Mended Hearts Open Forum

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  • 1.  Newbie

    Posted 06-21-2017 13:49
    I am very happy to find this group because I feel alone.
    I had a surprise heart attack back in February. I knew I had high blood pressure, and took medicine for it, but didn't know I had high cholesterol. I know it was my fault, I wasn't taking care of myself, but it was still a big surprise. That morning I was getting ready for work and I had just finished making my son's lunch for school when I had a crushing pain in my chest. I knew immediately that I was having a heart attack. My husband didn't exactly believe it but humored me since I am not prone to dramatics. At the ER, they hooked me up and confirmed I was having not just a heart attack but a major one (right coronary artery). We learned a new EKG term, Tombstoning. They couldn't take me to the hospital in an ambulance because "every minute counts" they said, I had to go in a helicopter. My town only has a satellite ER, not hospital. I was given baby asprin, nitroglyserin and morphine and shipped off leaving hubby behind with a devistated look on his face.
    At the hospital, I received a stent. I was awake from the beginning of the heart attack through getting the stent. While in recovery, my husband and son arrived. They found me wide awake, not in pain anymore and truly thankful and happy to still be alive.
    It was later explained to me how truly close I came to dying. But, I was also told it only affected one artery and the others were all clear. They also told me that I had no residual damage and that my heart was healthy. This is all good news but I just couldn't wrap my head around it. How can I almost have died but my heart is healthy?
    I was told that I now had to attend Cardiac Rehab and it sounded great, just what I needed. It included exercise where I could learn how much I can do, meetings with a dietician to learn about correct eating
    and group meetings to discuss heart health and dealing with the emotional aspects of having had a heart attack. Unfortunately, this was not what I got. I only got the exercise part. I asked about the other parts but was told that my heart was still healthy and I didn't qualify for that.
    Long story a little shorter, I am doing well, my cholesterol is down to 103, I have lost 27 lbs and my blood pressure is good. I just look everything up on the internet and hope I am doing right. My problem is emotionally. If I have a slight pain or pressure in my chest, I freeze, I get nervous. I am scared of having another heart attack. I am scared of leaving my son without a Mother. I don't want to die. I know I am acting like a newbie to all this and in time I will calm down.
    I just recently found Mended Hearts and they have a group in the next town over. Their meetings are the last Friday of the month so I plan to go this month. I'm not sure what they do at meetings but I am looking forward to it.

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    Karynne Muncy
    North Port FL
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  • 2.  RE: Newbie

    Posted 06-23-2017 12:22
    Hi Karynne, 

    Nice to meet you! I'm glad you found us too. What an amazing story! I'm so glad you are doing well and have had such a great recovery. ow scary that must have been. 
    My name is Andrea and I'm around a lot (not as much as I would like to though). I run the Patient Advocacy program for Mended Hearts. My son was born with a congenital heart defect 8 years ago and I started a local chapter of Mended Little Hearts shortly after his first open heart surgery. That was 8 years ago as well. I've been a part of Mended Hearts ever since. We have a fabulous organization full of great people. I'm glad you have a chapter close to you. That will be great. 
    Good job on the healthy lifestyle changes! That's amazing!! Keep up the great work. 


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    Andrea Baer
    Director of Patient Advocacy
    Mended Hearts/Mended Little Hearts
    Grapeville PA
    7243967820
    Director of Patient Advocacy
    ------------------------------



  • 3.  RE: Newbie

    Posted 06-24-2017 01:22
    I think Karynne should talk to her doctor and look into other cardiac rehab programs.  If it was prescribed for her and she enrolled in Phase 2, she should be entitled to the full 36 program which is covered by insurance.

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    Francee Levin
    Columbia SC
    (803) 788-1207
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  • 4.  RE: Newbie

    Posted 06-24-2017 23:17
    Andrea happy Saturday! I have been observing various meaningful communications on your new forum for several months but my first time to communicate myself. I have been a Mended Hearts member in West Houston for about 5 years. During the last 18 months I have been a trained certified visitor, usually visiting 7 to 20 patients per week. I have a long history of heart disease commencing when I was 35 in 1974 with a triple bypass. I was instructed by my heart surgeon, the famed Dr. Denton Cooley at Texas Heart Institute that I must eat right, exercise 5 times per week, and sell my bank if. I wanted to see my youngest son, who was then 5 years old grown. I took him seriously and did sell my bank immediately as well as 12 other businesses I owned. I also started exercising in the gym at least 5 times per week and eating right. However, professionally I wasn't so good as I opened 52 retail stores as well as consulted among other positions in that industry. It wasn't until 2010, some 36 years later that I needed another open heart procedure. This time it was 5 bypasses done by the best complications/redo doctor in the business, Dr Greg Matter at Baylor Hospital in Dallas. Then, after 2 stents in early 2014 I had my third open heart surgery which was a triple bypass in May of that year again done by Dr. Matter who had relocated to Paris Texas. After 21 years of being a bachelor following my second widowhood I got married last December to the love of my life. Fortunately my health is excellent and I have relocated to Georgetown, Texas where my new wife already had a home. I plan to start a new Mended Hearts chapter in this central Texas area early in 2018 as I have experienced what Mended Heart visits mean to patients that have just had a heart procedure. My wife and I are going to be attending the MH national convention and training forum in Nashville starting July 3rd. I am so thankful for the active life and lifestyle that I have been blessed to enjoy and I intend to continue sharing it with others that have heart issues. Kindly, Sam Bowman

    ------Original Message------

    Hi Karynne, 

    Nice to meet you! I'm glad you found us too. What an amazing story! I'm so glad you are doing well and have had such a great recovery. ow scary that must have been. 
    My name is Andrea and I'm around a lot (not as much as I would like to though). I run the Patient Advocacy program for Mended Hearts. My son was born with a congenital heart defect 8 years ago and I started a local chapter of Mended Little Hearts shortly after his first open heart surgery. That was 8 years ago as well. I've been a part of Mended Hearts ever since. We have a fabulous organization full of great people. I'm glad you have a chapter close to you. That will be great. 
    Good job on the healthy lifestyle changes! That's amazing!! Keep up the great work. 


    ------------------------------
    Andrea Baer
    Director of Patient Advocacy
    Mended Hearts/Mended Little Hearts
    Grapeville PA
    7243967820
    Director of Patient Advocacy
    ------------------------------


  • 5.  RE: Newbie

    Posted 06-24-2017 09:25
    Dear Karynne,

    Thank you for reaching out, welcome to Mended Hearts! My story is very similar to yours - almost ten years ago after just turning forty I was rushed to the ER having no idea what was happening and saved by the placement of 3 stents in my right coronary artery and another in my left descending - 4 total, and because I made it to the hospital quickly I had no heart damage. Cardiac rehab was an excellent kick start to a now passion for good health and fitness. I'm in better shape now than I was in high school / college. I found books by Drs. Caldwell Esselstyn and Dean Ornish extremely helpful. 

    My best to you -

    Mike

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    Michael Anthony
    Mended Hearts - VP - Chapter 140
    Northern New Jersey
    River Edge NJ
    (917) 447-7710
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