Mended Hearts Open Forum

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  • 1.  Don't know which way is up...

    Posted 04-19-2018 12:22
    Hi Everyone, I recently just joined this group. In September 2017 I made 2 trips to a local ER with trouble breathing; on the second visit the doctor on decided to run some additional tests since nothing seemed to be helping. That blood test changed a lot for me.... She came back saying it was my heart. At that point I spaced out while things like "congestive heart failure" "heart attack" "surgery" were being thrown around.... There was I 32, sitting alone in the ER sobbing hysterically. In the next few hours I was tested and hooked up to monitors and rushed to a nearby hospital where they would be doing my surgery. I woke up 17 days after being admitted to the hospital (10 days after surgery) being told there were complications (that's why I was out for so long) and I had CABG x6.... I didn't even know they did 6 bypasses. It was 2 months before I was able to go back home (after 23 days in the hospital I stayed with family for a while) and as much as I'd love to say surgery hasn't changed things, it has. I spend a lot of days thinking how have I gone through this at 32??? Thank you 20 years of diabetes. I am hoping to find some support on here because life has been rough. I still have my good and bad days and the ups and downs. 

    Any tips, advice, words of wisdom?

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    Jennifer Marsh
    Clifton Park NY
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  • 2.  RE: Don't know which way is up...

    Posted 04-20-2018 12:54
    Hi Jennifer and welcome to the family. Rest assured you are not alone in this, heart disease is the number one blight on the world today and affects people of all ages, in fact you'll note we have a Mended Little Hearts group specifically for young children. Heart disease came as a total surprise to many of us, in fact I had an accident while snowmobiling  and thought I'd broken a rib. Turned out it wasn't quite that serious, just a heart attack and Congestive Heart Failure. Five weeks and a tour of all the local hospitals and they performed an overhaul and crammed in a defibrillator for good measure, good as new. Well, my family might disagree. Still what you are coping with is quite common, and that is why we are here, to help you on your new adventure. I would encourage you to get some of the literature available here and learn all you can about your particular condition so you can communicate more thoroughly with your medical team. Follow the treatment regimen they developed for you and if you haven't already, participate in a Cardiac Rehabilitation program, ask your Cardiologist for a referral. Oh and I found that maintaining a sense of humor about this helps. Again welcome, we're glad you found us and decided to join.

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    Warren
    TucsonAZ
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  • 3.  RE: Don't know which way is up...

    Posted 04-21-2018 09:13
    Good morning Jennifer. I had my surprise of a triple bypass 20 years ago next month, and then 15 years later I became the owner of 2 new heart valves. As a hospital visitor for the past 10 years I have come to realize that while we all have a lot in common each one of our circumstances is different. As I have visited with heart patients I've seen that many time I receive much more than I give, which is common in volunteer work. For example while I was anticipating my upcoming valve replacement I visited with a patient who had just had his second heart operation, the first being about 20 years before. He gave me some words that I share, his first surgery allowed him to be around and raise his children and now this second surgery would allow him to be around for his grand kids. Then he surprised me with the comment that he would sign up now for a third in another 20 years if he could be with his great grand kids. Knowledge about your particular situation is very important, and as Warren stated a sense of humor a huge help to deal with those down days. You are one of the lucky ones who has been given another chance, reach out and embrace it, find a local Mended Hearts group. They will both listen and share their experiences.
    I have visited with patients from their early 20's to their early 90's, it is quite a group that you now belong to, and one thing for sure is that we are all different. But we are bonded by our common experience, don't be shy about reaching out, you may not only find the support you need but you may also find that you can give support to another, which is great in itself. I wish you the best and welcome to "The Zipper Club" it is a club of survivors.

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    Ken Pedlow


    [Deland] [FL]
    [407-694-6291]
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  • 4.  RE: Don't know which way is up...

    Posted 04-26-2018 12:53
    Hi Jennifer, 

    I'm happy you found us. I'm so sorry that you have had to go through so much. The journey is really scary and sometimes so unpredictable. So many struggle afterwards with finding their new normal. I don't really have any suggestions other than to keep on talking and sharing. Understanding you are not alone is powerful. I know when my son was diagnosed at birth (and the surgery to follow) I was so scared and felt like our lives would never be the same again. I was kind of right....our lives have changed, but really in so many ways for the better. 
    Hang in there, surround yourself with others who understand, and keep focusing on taking care of yourself and finding things to bring enjoyment. 

    Welcome again!

    Andrea

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    Andrea Baer
    Director of Patient Advocacy
    Mended Hearts/Mended Little Hearts
    Grapeville PA
    7243967820
    Director of Patient Advocacy
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  • 5.  RE: Don't know which way is up...

    Posted 04-27-2018 09:39
    Hi Jennifer,
    I am so glad you found your way to this group. It is shocking to be 32 and have your life turned completely upside down. This group has a wide range of personal stories and all of them boil down down to informing us that 'we are not alone'. My athlete brother found himself in the emergency room one morning and 30 days later was finally released to go home. He has limited recollection of those long days and while physically healed and strong, eight months later he continues to find his way back to his self. You have been through a physically, mentally and most of all emotionally demanding experience. It's important that you continue to reach out from the people here as well as to your doctors,  family and community. Google 'cardiac survivor' on Amazon and you will find several books that detail similar stories and outline ways to overcome many survivor issues. Daily exercise at whatever level you can handle has incredible benefits. Educate yourself about your meds and their side effects. And most of all give yourself all the time to heal and all the reasons to hope. Wishing you a multitude of good days ahead!

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    Patricia
    NC
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