We want to let you all know about an upcoming webinar. Although the topic is focused on teens and the Fontan procedure, there will also be information about clinical trials in general. If you have ever considered participating in a clinical trial, you may want to attend this webinar.
The Pediatric Heart Network, Mended Little Hearts and Sisters by Heart are hosting a webinar about a clinical trial available for qualifying Fontan patients between the ages of 12 and 18, called the FUEL Trial, on April 26 at 1:00 p.m. EDT. In this webinar, you will learn about the FUEL Trial itself from Dr. David Goldberg of Children's Hospital of Philadelphia. You will also learn about what it's like to participate in the trail from Lucy, a 17-year-old currently in the trial and from Jennifer, a mom of a son in the trial. There will be an opportunity to ask questions as well. If you have ever thought about participating in a clinical trial as a patient or a parent, please join us and learn more.
Please register for The FUEL Trial--Clinical Trial for Fontan Patients on Apr 26, 2017 1:00 PM EDT at: https://attendee.gotowebinar.com/register/7387557435979488001After registering, you will receive a confirmation email containing information about joining the webinar.------------------------------
Mandy Sandkuhler
Alpharetta GA
(469) 888-3400
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