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Patient input wanted to help improve diagnosis of AAA rupture and aortic dissection

  • 1.  Patient input wanted to help improve diagnosis of AAA rupture and aortic dissection

    Posted 02-27-2022 14:30
    I am forwarding this message from Dr. David Meyers at the American College of Emergency Physicians (ACEP). The College would like to learn about the patient experience of AAA rupture and aortic dissection in order to help emergency physicians identify these conditions more rapidly. If you are interested in helping, please message me and I will forward your contact information to ACEP.

    From Dr. Meyers:

    I am on a panel established by the American College of Emergency Physicians to develop quality measures for the diagnosis of ruptured abdominal aortic aneurysm (rAAA). The effort is funded by a generous grant from the Gordon and Betty Moore Foundation. We held our first organizational meeting this week and discussed how we will proceed. One of our top priorities is to engage with patients or family members who have had experience with rAAA and have them on our work group. 

    In addition, ACEP is working on another such effort, funded by the John Ritter Foundation, to develop quality measures for aortic dissection (AD). The Ritter Foundation came about after John Ritter, a well known and loved TV star, died of AD nearly 20 years ago. Patient involvement in that panel is also desired.

    Anyone with interest or experience with these diseases who would be interested in participating in ACEP's efforts is invited to contact me for more details. Thanks in advance for your interest in this matter. 

    Thank you,
    Helen Haskell
    803-312-4390