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Need to connect with Mitral Valve Ring Patients with Arrythmias

  • 1.  Need to connect with Mitral Valve Ring Patients with Arrythmias

    Posted 12-10-2019 12:54
    Hello Everyone,

    I am hoping someone out there can help.  I need to find someone who might be going through the same problems I am going through.  I need to connect with any mitral valve patients who have had a valve ring put in and continue to have arrhythmia issues.

    I am told my valve ring repair is the cause of why I continue to experience Atrial Flutter with SVT episodes.  The doctors I am currently seeing are telling me my heart ring is where my heart is misfiring and they are unable to access it.   I have had a maze procedure and 3 ablations by 2 different doctors.  The last Dr. said he was 95% sure he could fix me.   He attempted to get to this misfire 2 times with no success as I just had my 14th cardioversion yesterday.

    I am currently seeing a new EP.  He said another ablation is a 50/50 chance.   However, his partner boasts that he could fix this because the last doctor didn't complete the scarring to stop the misfire.   The more scars and the more procedures I get the more they are killing off my heart.  I am only 48 years old and I DO NOT WANT a pacemaker as I am told it will require an av node ablation which will make me 100% dependant of this pacer.

    Needless to say, this cycle of continual cardioversions and ablations is not working for me.   What if anything are you doing to help yourself if this is your scenario also?

    Also, are any of you aware of a place I can go to do research to learn who in the country can fix this and know for SURE they can do this?  I know nobody can give me a 100% guarantee, but if I am going to make any further moves on surgeries I need to make sure I am doing the right thing.  How can I research doctors who have had this very problem and know exactly how to correct it?  I need an expert!!

    I simply cannot continue like this.  The PTSD associated with 188 heart rate is horrible.  Mentally and physically.

    Any help you can provide is appreciated.

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    Lisa Gruccio
    Coral Springs FL
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  • 2.  RE: Need to connect with Mitral Valve Ring Patients with Arrythmias

    Posted 01-02-2020 10:59
    Huh??  I never received a response.   Does this mean I am the only one with a mitral valve repair who is experiencing arrhythmias?

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    Lisa Gruccio
    Coral Springs FL
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  • 3.  RE: Need to connect with Mitral Valve Ring Patients with Arrythmias

    Posted 01-02-2020 15:23
    Lisa
    No there are others out there, but they do not like to talk about their problems!!
    You need to find the best  Heart Doctor in that field and have a long talk with them!!  Had my Mitral valve done in 2006 and have had good results but I am on medications that have kept me on a good track !!!
    The outcome has a lot to do with having GREAT medical people who care what the do for their patients!! Here in Houston we have the best!!!1
    Good luck in your search!!
    William Ray


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    William Ray Jaudon
    Houston TX
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