I have been a part of the ACHA for 5 years as a CHD provider. The great thing about the organization is that providers AND patients work together to improve care for people with CHD. I encourage you all to take a look. They have the most complete information on defects and resources you can find and have an "ambassador" program that can link people with the same defects to get questions answered. I know a lot of people reach out on social media to get help but the ACHA, as with Mended Hearts are trusted resources that I recommend! I have been a member and speaker for my local Mended Heart chapter and think the combination of resources is awesome. I'm happy to see so many people reaching out for more CHD information!