Mended Little Hearts Open Forum

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  • 1.  Summertime Tips

    Posted 06-02-2017 13:20
    Hi Everyone!

    I thought we could share our summertime tips with each other. Keeping my heart kiddo cool in the summer is a huge deal. He gets overheated quickly and we have to really monitor him when the weather warms up. We usually limit outside time to the mornings and the evenings, but that doesn't always work. When we are outside I use a wet towel for his forehead and the back of his neck, I push fluids, and keep him in the shade. Also....he's in the pool as much as he can be in the summer, so that helps. 

    What are the things that you do?

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    Andrea Baer
    Director of Patient Advocacy
    Mended Hearts/Mended Little Hearts
    Grapeville PA
    7243967820
    Director of Patient Advocacy
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  • 2.  RE: Summertime Tips

    Posted 06-03-2017 05:54
    Have you considered a cooling vest?
    Techhttps://www.amazon.com/TechNiche-International-HyperKewl-Cooling-Sports/dp/B00DU7GXLUNiche International HyperKewl Cooling Ultra Sports Vest
    (This is just an example, I don't have any specific product recommendations I can personally share.)

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    Kristen Gordon
    Austin TX
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    Original Message


  • 3.  RE: Summertime Tips

    Posted 06-04-2017 16:02
    I am a 49 yr TOF and I use cooling towels.  You can get them at any sporting good store.  They look like chamois.  I even used them when we rode on a motorcycle cross country to Sturgis.  Believe me it was hot.  I was the only one of the group that was comfortable!  They are pretty cheep and  are rechargeable with almost any temp water does not need to be cold to work.  You can cut them to size.  I have seen some people wrap them inside of a headband.  Would work great in a Survivor Buff and I think appropriate since we are all warriors!

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    Robin Davis
    Madison OH
    (440) 428-2562
    (216) 905-1514
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    Original Message


  • 4.  RE: Summertime Tips

    Posted 08-10-2017 23:47
    Be cautious of how much water your child drinks.... input/output.
    Goes both ways not enough or too much water can flush system of potassium, esp our little ones on diuretics. 




    Original Message