As a mom of 2 Complete Atrioventricular Heart Block Kiddos my daughter with a pacemaker, my son waiting for his pacemaker. We have two completely different kiddos on each end of a widely spread spectrum. My daughter as an infant prior to her pacemaker was a terrible eater, my son was a champ as an infant. Days post op for my daughter-she turned into the eating champion, my son--well his "diet" went down to a handful of things he would eat. We are now at age 6 and eating has been an uphill, chest deep in mud, battle on eating. I've talked with his doctor, we've seen food therapy, nutrition, and now we are off to the GI doctor next week. I am at my witts end with this kid. Curious to hear if anyone has seen a huge shift in their kiddo after delayed intervention like we are facing? Or was that a factor to when they needed intervention (ie. pacemaker)? This morning it took us an hour to get down half of a pancake, and he refused to eat his yogurt. Prior to this morning yogurt was his breakfast--i am beyond frustrated with this kid. (we've cut out junk food, snacks between meals, and he still refuses to eat--but somehow he's gaining weight!) I am stunned and frustrated!!!
Has anyone lived through this? Or remotely similar with their heart warrior? Help!!!Thanks,Lydia