Hello,
My name is Dianna Amberg and I'm familiar with Cardiomyopathy. In 2010, at the age of 38 a virus attacked my heart, I went I to V-tack, was diagnosed with viral cardiomyopathy, and had a pacemaker/defibrillator implanted in under a week. I did well for about 3 years before I began getting shocked, I was in and out of the hospital for a couple of months, had an ablation surgery done and they discovered my heart was dying and wouldn't/couldn't sustain itself. I was put on ECMO, flown to UCSF, and after a couple of weeks an LVAD was implanted. Almost 2 months later I woke up from a coma, I was in the hospital for 4 months, and got to go home in September 2014. A month after I got home I was removed from the heart transplant list because my anti-bodies were 98% out of 💯, thus my body would've rejected the new heart. In February 2016 I was told that my anti-bodies were 70% and it was "doable", over the next few months I did everything that was required. On April 13th I was placed back on the list. My husband and I were approved to go to our daughter's wedding in Las Vegas, the day after her wedding we kept getting phone calls and it was before 8am, it was "the call" so we left Las Vegas and headed to UCSF. My heart transplant surgery was on April 18, 2016, I was in the hospital for 10 days, and an out patient for a month before going home. I am 2 1/2 years post transplant and I feel amazing. My advise to you is to listen to your doctor's and if you want ask for a second opinion. You are her advocate and you have to fight for her and her health. If you have any other questions or would like to talk, I'm just a call, text, or message away. I wish you the best on this endeavor.
Heartfully, Dianna Amberg
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Dianna Amberg
Chapter 92 - President
Mended Hearts
Lebec, CA
559-377-1535
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Original Message:
Sent: 10-26-2018 12:59
From: Vitus Mbamalu
Subject: A case of HYPERTROPHIC CARDIOMAYOPATHY
Good day everyone. I have a relation with HYPERTROPHIC CARDIOMAYOPATHY. How can she be helped? She is about 29 years. I attached a video of the diagn
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Vitus Mbamalu
NY
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