Mended Little Hearts Open Forum

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  • 1.  New Member

    Posted 05-23-2017 17:38
    Hi everyone.  I am a new member but not new to congenital heart defects. My son was born with TOF.  He has had multiple surgeries and is now 15 years old and doing great.

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    Cathy Yanas
    San Antonio TX
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  • 2.  RE: New Member

    Posted 05-24-2017 12:41
    Hi!
    Welcome to the community. We have quite a few members here whose children have TOF. I'm sure they would love to have the knowledge of a parent whose child is a bit older. 
    My son is 8 and has Down syndrome and an AVSD that was repaired. We currently are monitoring a subaortic membrance that is causing subaortic stenosis. He will eventually need another surgery to repair that but he's currently stable and well.

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    Andrea Baer
    Director of Patient Advocacy
    Mended Hearts/Mended Little Hearts
    Grapeville PA
    7243967820
    Director of Patient Advocacy
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  • 3.  RE: New Member

    Posted 05-26-2017 22:56
    I would be more than happy to help any other TOF patents with younger children by sharing my experiences.
    I'm glad that your son is doing well.

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    Cathy Yanas
    San Antonio TX
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