Mended Little Hearts Open Forum

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  • 1.  O2 issues and peds to adult

    Posted 01-15-2020 13:12
    Hello, my son has had multiple surgeries and defects but the one that is ongoing is aortic stenosis. He had leaflets opened up again a year and a half ago but a tee showed bicuspid in March. Recently came down with cellulitis and spot is getting smaller but o2 is dropping into 80's w a little bit of walking. Can a valve situation do this quickly? He's on antibiotics and valve is still Stenotic. 2nd ques: if he just turned 18 can I still get second opinions at peds centers for congenital heart? Thanks!


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    Teresa White
    Jacksonville FL
    (904) 233-1512
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  • 2.  RE: O2 issues and peds to adult

    Posted 01-16-2020 08:40
    I am 51 years old and still see a pediatric cardiologist 

    Robin Davis

    Merck & Co. Inc.
    216-905-1514. 

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  • 3.  RE: O2 issues and peds to adult

    Posted 01-17-2020 08:03
    My Daughter is 23 and still sees her pediatric cardiologist. She can stay there as she has no complications as an adult. They are an amazing group , I am thrilled she can still see them.

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    Peggy McDonald
    Wee Can Preschool & Childcare
     
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  • 4.  RE: O2 issues and peds to adult

    Posted 01-16-2020 11:06
    Teresa,
    Many of the good peds CHD centers have adult CHD programs too.  I would contact one.  A second opinion from a well-respected CHD center is always a good thing. I think, if valves are not working well, infections can happen more easily.  I know that to be true with endocarditis.  

    I hope you get some good answers.  There are many more things they can do with aortic valves these days.

    Jodi Smith

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    Jodi Smith
    Program Director
    The Mended Hearts, Inc.
    Richmond VA
    (804) 647-3830
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    Original Message