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ascending aortic aneurysm

  • 1.  ascending aortic aneurysm

    Posted 06-19-2020 23:03
    Hi--I'm a newbie to the group. I have had  ongoing crazy blood pressure issues, crappy family history, lots of med changes and finally had an echo; found out I have an ascending aortic aneurysm- 3.7.  I was diagnosed literally a week before all the COVID stuff shut everything down, so have just been dealing with reading lots of info online and sorting out priorities. I had my second appointment today and told my dr that I've been having a few times where its hard to breathe (but it could be COVID and masks or anxiety), and also some swelling in my feet and lower legs. I have never shied away from anything and was all ready to kind of push to an earlier surgery ( I'm only 63), but my dr was pretty up front about the dangers of surgery vs possible danger of dissection, so am resigned to the wait and see, get an echo, wait and see game. Lots of anxiety, and pretty sure no one really gets how serious this is. Am I crazy or did others feel under-appreciated with this diagnosis? Thanks--Melissa

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    Melissa Karr
    Business owner/musician
    Iowa City IA
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  • 2.  RE: ascending aortic aneurysm

    Posted 09-07-2021 08:40
    Hi Melissa,
    i just came across your post from last year. I've got a similar story. 63 years old, ascending aorta dilation of 4,2 from a CT scan. Interestingly enough they sent me for an echo too and that showed the dimensions at 3.9. I met with cardiologist who is sending me on to a thoracic surgeon to be followed. I have that appt in 2 weeks.  Everything I've read says that your size is mild. It may never grow beyond the current size, which is the hope. I'm just wondering how you are doing and has anything changed with your diagnosis? I'm not seeing any other posts or replies attached to this thread but I'm having trouble using this forum. Thank you!

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    Cindy M
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  • 3.  RE: ascending aortic aneurysm

    Posted 5 days ago
    Hi Melissa I was also recently diagnosed with an ascending aortic aneurysm. I was expecting a lung issue so I was quite shocked by the news but heart issues run deep in my family. Like you too soon for surgery but it does feel like a ticking time bomb when I let my anxiety get the best of me. It helps to tell myself I've probably had it a long time and just didn't know. I've totally changed my diet and went on a statin. I've been told you can live many years without it growing it's just wait and see. I wish you well I'm the same age as you very frustrated that I thought I was in good shape but smoking in my youth and genetics got the best of me. My husband has had a heart attack he tried to compare it to my condition but he can't bc u can survive a heart attack but not a dissection so yea I feel folks don't get the severity of how vulnerable I feel. I wish you all the best thank God for the technology that allows us to monitor it. Thanks for posting. Diane




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    diane stewart
    retired
    briarcliff manor NY
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  • 4.  RE: ascending aortic aneurysm

    Posted 09-07-2021 10:04
    Cindy- thanks for reaching out!  I'm doing well for the most part; a quick visit to ER on Xmas eve for pain between my should blades; aneurysm is fine; dr said I had moderate chance of cardiac event because my ekg was funny. Was diagnosed this spring with an additional abdominal aneurysm- small. Just living the dream here��





  • 5.  RE: ascending aortic aneurysm

    Posted 09-08-2021 08:20
    Melissa and Cindy,

    I never had your condition but I have had open heart coronary artery bypass surgery.  I'm here to tell you that you should consider it a blessing that you're being told to wait, monitor and see if OHS to correct your aneurysm is ever warranted.  While we tell people this on this forum who are about to have OHS for whatever reason that this surgery has become routine, it's performed every day and so on, believe me, if you can avoid having the surgery you are lucky.  However routine it may be for the doctors to perform, it's neither routine nor fun for the patient.  And I'm speaking from the viewpoint of a guy who made a complete recovery, an "amazing" recovery from the viewpoint of my cardiologist.

    If you ever need the surgery, I'm sure that you will be fine but, in the meantime, count your blessings that you can avoid it for now, maybe forever, and just go about your life with a periodic monitoring visit/test. And as for fears/anxiety about what the future may bring, I personally have found that meditation helps me stay in the here and now, appreciating every moment of the borrowed time on which I am living for the past 3 1/2 years since my heart attack and emergency OHS when I was 67 1/2.  Learning to smell the roses has been the greatest gift I could have received from my heart attack and surgery.

    I wish you both good luck and good health and happiness.

    Ira

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    Ira Reid
    Hoboken NJ
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  • 6.  RE: ascending aortic aneurysm

    Posted 09-09-2021 13:05
    Hi Melissa and Cindy,
    I had a TAA in 2017 at 4.3 and we watched it until 2019, when it was 5.3 and time for surgery. I found the diagnosis unnerving; it made me anxious, like I had a ticking time bomb in my chest. My doctor was supportive, but no one can change the fact that it is YOU who has to deal with it. I found prayer (Contemplative Prayer) and yoga and meditation helpful. I also may have a little abdominal aneurysm; so small the doc is unsure. I tell myself that most people have something wrong with them. They usually don't know it.  I am thankful that we found my problem before it became a really big one.
    By the way, my youngest brother has a TAA in the same place, and it is a 4.0 cm. Make sure you tell your sibs to get checked.
    I am happy to share about my prep for surgery, and the whole Open Heart experience, if you have questions.
    My best to you,
    Andrea

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    Andrea Broding
    School Psychologist Retired
    Santee CA
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  • 7.  RE: ascending aortic aneurysm

    Posted 11 days ago

    Thank you 🙏 so much for your sharing. My name is Long Tran, 68 1/2 years old, living in Omaha, Nebraska, CT scan just found out 9 days ago that I had 4.2cm thoracic aortic aneurysm and chronic dissection in my abdominal aorta, also have some calcium build up in my heart. I'm very nervous about the position of my AAA because it's right in front of the heart. Today I'm going to see a cardiologist, I pray 🙏 for my heart. I don't know what to do?
    Thank you for reading my post. 🙏



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    Long Tran
    retired
    Omaha NE
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  • 8.  RE: ascending aortic aneurysm

    Posted 12 days ago
    Hi Melissa and Cindy,

    I am just the same- surprise diagnosis of Ascending aorta aneurysm (46mm) in February, investigations since and I meet up with cardiologist to discuss in three weeks.
    I'm 52 years old and a busy farmer, everyday I am worried I am doing too much? I am not asymptomatic so would prefer surgery to get on an improving curve rather than a declining one.
    I have a distant cousin who has been in 'watchful waiting for 8 years' he is now booked for surgery. so my time maybe a while!
    Take care and look after yourselves

    Darren

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    Darren Tebbitt
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  • 9.  RE: ascending aortic aneurysm

    Posted 11 days ago
    Thank you 🙏

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    Long Tran
    retired
    Omaha NE
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  • 10.  RE: ascending aortic aneurysm

    Posted 3 days ago
    I know exactly how you feel. The worry, anxiety and the "not-knowing" what the future holds can be very hard to deal with at times. Having had three heart attacks, seven stents, triple bypass surgery and 14 heart catheterizations over the past 9 years, I've had numerous times when I've wondered if this will be my last day on earth. I've gone to bed wondering if I will wake to see the sunrise. Fortunately, and thankfully, I am doing good at the moment and hope it continues for some time but I have to say that Mended Hearts has been a tremendous blessing to me, and can be for you, as well. Having always been a very fit, positive mental attitude kind of guy, I was really struggling with anxiety and depression after my OHS, something I had never experienced before and something neither the doctors nor nurses had told me was common and that I should expect. It was only through my own search for a support group that I stumbled across MH. Reading other people's stories on here of what they are dealing with and the support and encouragement I received from the group really made a huge difference on my mental outlook. Although I still have days where I don't feel good and that can get me down a bit, I'm pretty much back to my old happy-go-lucky self. The best thing you can do is stay plugged in here, listen to your doctors and live each day to its fullest, making sure you never miss a chance to tell your loved ones how you feel.





  • 11.  RE: ascending aortic aneurysm

    Posted 3 days ago

    Hello Brett Temple,
    After reading your store I feel much better for my heart conditions and my mental. You're very strong and incredible. 

    Thank you so much 🙏




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    Long Tran
    Omaha
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  • 12.  RE: ascending aortic aneurysm

    Posted 3 days ago
    You are most welcome, Long. Just paying it forward as so many people on here have helped me. Although there are many different afflictions of the heart represented here, we are all riding the same train when it comes to how it affects us mentally and emotionally. Knowing we are not alone on that train really helps a lot, at least it did for me.

    Many blessings, my brother!
    Brett