Mended Hearts Open Forum

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  • 1.  Amiodorone

    Posted 09-24-2018 21:23
    This drug was a miracle worker. However per the instructions of the Dr. to stop talking the drug -after a couple of months I received multiple SHOCKS.  Went to the hospital and was told to resume taking the Amiodorone. When I Stoped that caused me to experience the shocks.  Dr Mistake!  I now take the Amiodorone religiously. 

  • 2.  RE: Amiodorone

    Posted 03-27-2020 03:59
    I've  been  ON  amiodarone  4  seperate  Times  Since  2009 (ten years).  Its  A Drug that  has a Notoriously   bad  reputation   for  Long term use  side affects  supposedly  And  To be  honest  The only  negative thing   I've  experianced  that I can corelate  to It  (possibly)  was  ultimately   suffereing AFIB  after  the fact  BUT  In reality  UNLESS  I KNEW   THE drug had  Cause   My septal wall  to thicken   I have  NO proof  of  that  even being  connected....  so Like  Statins  in Public  opinion are  supposedly  TERRIBLE  worst thing anyone can have  but I also Know   the  1st 6 years   Post  Aortic,  I survived   With My diet   just fine  And Now  tha  I am taking a  statin  I  dont "have to"be  as  concerned  about ALL   my fats  I have  taugh   myself  Good   practices  Over the  old poor ones .... I am also quite  aware  That  these  last ten years  were  a Gift  IF  I  keel over    right now  I already had  10 Bonus years.

    Update:  On March  12  I was IN  to  see MY Doctor  and  he   said he was pleased  with my general  Progress  he's   taken me Off  he  Amioderone,  as  long as  My heart rate    stays  stable he  says  I  will so you  Next year   SO  I'm  quite  pleased

    Jim S.

  • 3.  RE: Amiodorone

    Posted 03-27-2020 11:28
    Like many open heat patients, I was prescribed amiodarone along with other anti-arrhythmic drugs.  After several months, my cardiologist took me off this drug due to
    potential side effects.  I was told this is a boutique drug and other more common anti-arrhythmic drugs can treat Afib and PSVT (
    Paroxysmal supraventricular tachycardia) without long term risks of taking amiodarone.

    Victor Fabry
    Short Hills, New Jersey

  • 4.  RE: Amiodorone

    Posted 03-27-2020 12:25
    Like both of you, I too was on Amiodarone. My doctor was trying to regulate my heart rate. that lasted for several months but he was not happy with the results. After having me wear a monitor full time for 3 weeks he decided to put in a pacemaker. That was in 2017 and my heart rate has been consistent ever since. 
    I am not suggesting you run out and get a pacemaker, but the heart monitor showed my cardiologist something that the ablation I had did not. I have not had Amiodarone since. I was one of the folks it just wasn't working for. I had to wear it 24/7 but it found what my other tests did not find. It is at least worth asking about if you are having what seems to be long term issues. If you already have a pacemaker then forget everything I just said as it does not apply to your situation.☺

    Richard Short 
    Chapter 395