Mended Little Hearts Open Forum

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  • Hi Daneen The coarctation may not require surgery. Depending on the nature/ extent could be possibly managed in the cath lab with catheter based interventions. With re to aortic valve and the root, you have many options including the Ross procedure which ...

  • My name is Daneen and have lived with a congenital heart defect for the past 50 years.  I was born with a BAV (bicuspid aortic valve). I have had mild stenosis with it progressing to moderate in my late 30's.   About 10 years ago I was diagnosed with ...

  • Hi!! Welcome to the community. I'm so glad you found us. We have lots of great people here with experience. I suggest you post in the Mended Hearts open forum because it's the most active with adults who have the experience you are looking for.  mom ...

  • Hi, I am so grateful to have found this group online. Not sure if I found the right community? I have a descending aortic aneurysm, 4.0m. Going for a Cat scan this week. I find the process overwhelming and am glad to find a place to learn more about my ...

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    Hello to everyone.  I am the Mom to an amazing CHD warrior that is 20 years old.  He was born with HLHS, coarctation of aorta, severe pulmonary hypertension, with severe valvular disease.  He has had the series of 3 palliative surgeries at U of M, Ann ...

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