Mended Little Hearts Open Forum

Latest Discussion Posts

  • Hi!! Welcome to the community. I'm so glad you found us. We have lots of great people here with experience. I suggest you post in the Mended Hearts open forum because it's the most active with adults who have the experience you are looking for.  mom ...

  • Hi, I am so grateful to have found this group online. Not sure if I found the right community? I have a descending aortic aneurysm, 4.0m. Going for a Cat scan this week. I find the process overwhelming and am glad to find a place to learn more about my ...

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    Disability

    Hello to everyone.  I am the Mom to an amazing CHD warrior that is 20 years old.  He was born with HLHS, coarctation of aorta, severe pulmonary hypertension, with severe valvular disease.  He has had the series of 3 palliative surgeries at U of M, Ann ...

  • Hi there, My name is Marcy.  I have an 11.5 year old living with Truncus Arteriosus.  We've been living in the Santa Cruz Mountains since he was 2.  We are making a big move to the Boston area this summer as he has various special needs and the public ...

  • Hi Katrina, My daughter also had an ASD/VSD repair done when she was 7 months old. She had a residual leak out of her patch that was placed in the VSD that finally repaired itself as she has grown.. I completely understand your anxiety. I wish I could ...