Mended Little Hearts Open Forum

Isabella has OHS in September of last year (at seven months). She was diagnosed as failure to thrive before her surgery. We had hoped that after the surgery her weight would increase to where it should be since she wouldn't have to work her heart so much ...

Hello everyone, I believe it's probably been a mix of anxiety, denial, and sheer amazement that has taken me so long to form the words to introduce our family to the Mended Little Hearts family. I wear my bracelet everyday and have since the day I received ...

Hello, We are new to the forum. Our son who is 19 days old is diagnosed with Pulmonary Atrisia & VSD (TOF). He already had a stent put in to keep his ductus open with a cath procedure when he was 10 days old. He is recovering from it and started breathing ...

Hi Cory, I know this message was from awhile ago.. we're in Eugene and I would love to talk if you're still in the area! (Or even if you're not and just want someone to talk to :) ) ~L ------------------------------ lorissa Eugene OR ---------- ...

Hello! I cant believe it took me so long to utilize this resource! I have a 13yo kiddo HRHS, post Fontan. They have been stable with only aspirin therapy for much of their life since the fontan, and while they struggle with some emotional/developmental ...