Mended Little Hearts Open Forum

Latest Discussion Posts

  • Hi there, My name is Marcy.  I have an 11.5 year old living with Truncus Arteriosus.  We've been living in the Santa Cruz Mountains since he was 2.  We are making a big move to the Boston area this summer as he has various special needs and the public ...

  • Hi Katrina, My daughter also had an ASD/VSD repair done when she was 7 months old. She had a residual leak out of her patch that was placed in the VSD that finally repaired itself as she has grown.. I completely understand your anxiety. I wish I could ...

  • I am a 53yr old TOF so I have had my share of surgeries over the years.  Many of the I experienced post op arythmias.  Things eventually go back to normal.  It is amazing the things they can fix so young now.  The repair you went through they use to wait ...

  • Hi Katrina,  Welcome to the group! My son had an AVSD/VSD repair at 11 weeks old so I know the fears and struggles. He's 12 now and is doing great, however I still feel the anxiety on occasion that came with the new diagnosis and surgery. We have a lot ...

  • Hi! My daughter had OHS at 7 weeks for ASD/VSD repair and has a post op arrhythmia managed by medications. Would love other parents with similar experiences to reach out. It's only been a few months since surgery and I still have anxiety. Kat Palmore ...