Mended Hearts Open Forum

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    RE: ALCAPA

    Thank you so much for everyone who has responded!! She is followed by a group of doctors specialized for congenital heart defects. I have faith in the cardiologost and I know if surgery is on the table again, it will be up at the same place she had ...

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    RE: ALCAPA

    Dear Reannon, I'm sorry your daughter is experiencing difficulties. I was born with a congenital heart defect - Tetralogy of Fallot. I had palliative surgery at one year old and repair at 6 years old. I am now 58 years old and doing well so there's ...

  • Reannon, I know nothing about your daughter's condition as I am an older man with coronary artery disease. I do know something about warfarin, however, having taken it briefly after my bypass surgery 7 years ago. I urge you to ask your daughter's cardiologist ...

  • Good evening, I am wondering if there is another parent or caregiver who would like to chat. My daughter's ALCAPA repair was 9 years ago when she was 11. Everything has been good till now. Her recent MRI showed her LAD being aneurysmal and now she is ...

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    ALCAPA

    Good evening, I am a parent of a now young adult CHD child. My oldest daughter had ALCAPA repair 9 years ago. Everything was going great, but now after transferring to adult care, they have found her LAD is dilated and aneurysmal. She is starting warfarin ...

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