Original Message:
Sent: 3/17/2025 1:44:00 PM
From: Terrell Williams
Subject: RE: 2X CABG Surgery
I owe you all comment, in case you have to make a decision regarding a leadless pacemaker option. There was a Medicare database study published in the prestigious HeartRhythm Journal this month, including over 23,000 pacemaker patients. They found that all-cause mortality depends on where the electrode is placed, not where the battery is. Someday there may be a leadless pacemaker with an electrode to pace the cardiac conduction system (either at the His bundle or at the left bundle branch). Be aware that any pacemaker that bypasses the cardiac conduction system puts patients at risk of what your doctor calls "pacing induced cardiomyopathy."
Please check out terms that you may not be aware of on Google, Microsoft Chrome's Copilot, or wherever you prefer, to see the risk.
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Terrell Williams
President
Pacemaker Patient Advocacy Group
Brooklyn Park MN
7634932300
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Original Message:
Sent: 03-16-2025 21:25
From: Victor Fabry
Subject: 2X CABG Surgery
Scott,
The ascending aortic aneurysm included an Edwards Surgical Aortic Valve. These valves typically last 10 to 12 years and when need replacement a TAVR procedure does not require OHS. I expect to need a TAVR very soon. I excercise 7 days a week; 4.7 miles in 1:22 outdoors on trails in good weather and 3.5 miles indoors on treadmill and 5 weight machines in poor weather. My heart rate at rest is 65 bpm but up to 145 bpm exercising. I received a lead-less pacemaker in 2023 to keep the rate above 60 bpm. Since your 3 years post surgery you should be able to handle these heart rates but listen to you cardiologist.
Vic
Victor Fabry, Founder
Greylock Advisors, LLC
Healed Hearts of New Jersey
Original Message:
Sent: 3/16/2025 9:02:00 PM
From: Scott Kane
Subject: RE: 2X CABG Surgery
Hi Vic,
I really appreciate hearing about your experience! I've never spoken with anyone who had the same procedure and sometimes feel like I'm the only one. I wasn't told I was going to have my valve replaced until the afternoon before surgery so I never had a chance to do research beforehand.
Did your surgeon say follow-up repairs are common? I'm under my surgeon's guidance to keep my heart rate below 110 while exercising and my cardiologist is keeping my resting heart rate in the 50's and 60's to reduce stress on my repairs.
Take care and have a good evening,
Scott
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Scott Kane
Chico, CA
Original Message:
Sent: 03-16-2025 19:43
From: Victor Fabry
Subject: 2X CABG Surgery
Scott,
I read your response to Joe and I've had a similar experience. In 2007, I had ascending aortic aneurysm surgery including aortic valve replacement and second aortic arch repair in 2017. Since the first surgery, I've been taking 25 mg of metoprolol with out any heart issues.
100 mg. seems to be a heavy dosage which should be reviewed with your cardiologist.
Good luck,
Vic
Victor Fabry, Founder
Greylock Advisors, LLC
Healed Hearts of New Jersey
Original Message:
Sent: 3/16/2025 6:07:00 PM
From: Scott Kane
Subject: RE: 2X CABG Surgery
Hi Joe,
Congratulations on completing your OHS. I had OHS three years ago to replace my aortic root and valve due to aneurysm. As you said earlier, recovery is a marathon rather than a sprint and it takes a while to hit your stride. It's tough to suddenly not be able to do things you were able to do mere days before and aches and pains that you wouldn't have thought twice about are suddenly scary for you and those around you. It's perfectly natural to be concerned and have bad days along with the good ones. Be patient with yourself and celebrate all of the small victories while you get better. I walked 6-10 miles a day before surgery and was very excited when I could walk to the end of our driveway without getting winded after surgery. Speaking from personal experience, cardiac rehab did wonders to improve my physical condition after surgery and, just as importantly, boost my confidence in my health. I'm back to walking 6-10 miles a day but couldn't have gotten there without the small victories along the way!
You mentioned several other topics in your original post that sounded similar to my experience…
Burping. You said they go in rather than out. Are they more like hiccups? I started having hiccups in ICU the day after surgery and have them to this day. They come in ones and twos every so often throughout the day and night, even when I'm asleep. At first they thought the hiccups were caused by my drain tubes lying on my diaphragm. When it became clear the hiccups were not going away, my doctors suggested that the tissue or nerves around my diaphragm was disturbed during surgery and this is my new normal. It's a small tradeoff, in my opinion, so I don't mind.
Metoprolol. I eventually worked up to 75mg a day but my cardiologist has never had me take it all at once. I take three 25mg tablets a day, 1.5 in the morning and 1.5 at night. The 25mg tablets are scored so they're easy to break. Good job telling your cardiologist you felt like a zombie after taking 75mg all at once. Maybe talk to your cardiologist about a different dosing schedule? (I also saw you said that your cardiologist wants you to talk to your primary care doctor about your heart meds?? My cardiac surgeon explained that I'd continue seeing him and my cardiologist for follow-ups until I was healed. Then, I would continue to see my cardiologist for ongoing care and all my heart meds. My primary care doctor and dentist both confer with my cardiologist before prescribing me anything, get antibiotics before dental cleanings, etc.)
Pain. You said that pain around your incision was going down and then increased. Have you had a chance to talk to your surgeon about the increase in pain? It might be a good idea to have a follow up just to make sure you haven't strained anything while you're healing. I went in for a follow up after hearing a pop during recovery. It turned out to be nothing but you want to make sure everything is on track while you're on the mend.
BP. Now that I think back, my BP started to creep up a couple of weeks after surgery. It could be due to any number of things including post-surgery healing, the type of med you're taking, or environmental factors. In my case, I was still on restricted water intake. My cardiologist lifted my water restrictions when he felt confident I was not retaining water around my heart. He explained that limiting water can thicken the blood, which makes the heart work harder to circulate it. If you haven't started already, write your numbers down (or log them on your phone's health app) so your cardiologist can see how you're doing throughout the day.
All that being said, if you're concerned about something, call your cardiologist (or surgeon) and ask to be seen. That's what they're there for and most doctors dig when a patient is taking an active role in their recovery. I'm guessing you'll love rehab when you go, and that's a great place to ask questions too.
Hope you're having a good day,
Scott
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Scott Kane
Chico, CA
Original Message:
Sent: 03-01-2025 20:17
From: Joe Hoffman
Subject: 2X CABG Surgery
Hello everyone, I'm Joe 39 years old 2x OHS Cabg patient. My family history plus going in for out of breath and slight chest pain landed me surgery for double bypass. 80 & 70 % blocked. I'm glad I went in when I did but it hasn't been easy today the least! Doctors telling me I'm young and will make as much of a recovery close to normal as possible just doesn't seem to reassure me.
I've been home for a month now and have had a few bad days, today being one of them. I know I shouldn't read the internet but it's hard not to when you have things like this done.
My heart rate is still high 90-100s at rest, blood pressure still hovering around 130-140s/80-90s which none of the doctors seem to be concerned with. I'm on LD Aspirin, 50mg metoprolol, 25 losartan, hydrochloridizide, and 5mg of crestor which I cut in half because my muscle cramps are real.
I just don't seem to get good answers from my cardiologist and they seem to think everything is fine. I still burp a lot esp if I touch my stomach in certain areas, doesn't hurt, just more annoying. My BP and Heart rate still being high is concerning but nobody else seems to think so and I can't get answers as to why it's still like that.
I know this surgery isn't like a broken arm or anything like that and it's life changing but I just don't know if I'm getting better or if things will stabilize etc.
My chest incision is like the least of my worries. I get random numbness and tightness, or aches and pains but nothing terrible that Tylenol can't help.
I guess I'm writing this because I want to be heard and feel like what I'm saying makes sense to others haha and possibly someone being in the same situation as me.
I'm a chef/cafe manager and I probably won't be going back to work anytime soon because I constantly have to lift things and be on my feet for 8-9 hours a day. Even though work is the least of my worries taking care of my children is number 1. My wife's father just passed two days ago and she went up to NJ (we live in NC) and my father came to help me with the kids as much as he can. It's been a lot emotionally for everyone but for me I just feel like I can't get past these stupid numbers (bp & heart rate) and I'm so fixated on getting them right.
Maybe I just have to slow down and realize nothing is going to be normal that quickly but I feel like the medicine should be doing something to lower something and it's not. The one day they told me to up metoprolol to 75mg and I did and I was a zombie the whole day because my bp was lower than every 110/60s (heart rate was high 70s) I couldn't function besides lay down. So I'm on 50mg again.
Just feel like everything I do or say to drs or anyone they are okay with how I am feeling and I just don't get why I can't be giving a simple "that's normal" or a reasoning for something.
Thank you for listening to me rant and I hope everyone is doing well
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Joe Hoffman
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