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Am I getting the who picture?

  • 1.  Am I getting the who picture?

    Posted 12-26-2024 20:52

    I had my first appointment with a new cardiologist.  As he was going through my chart, he asked me if I had a attack heart during my stent placement three years ago.

    My response was I was never told this, so I also asked, "you tell me?"   He did not answer and then asked me if I had passed out during the procedure.  As he mentioned it, I remember having "the lights go out" so the speak during my time in the cath lab.  I was awakened during the procedure...I remember seeing a staff person looking down at me with her hands out near each each side of my head.  I heard really loud noise and then the doctor yelled, "I need you to breathe"...I took a breath and remember lights went out again, and I was awakened when it was over.  

    No one mentioned anything.  My wife tells me the door came out of the lab with an excited tone telling her he was shocked I managed to even walk into the hospital that morning.  One stent and three other arteries were worked on with no stents as they would not have helped.  He tells her I could have died in the lab, but he never spoke to me.

    Anyway, I have gone through a frustrating process of trying to get a complete picture of what happened.  When I asked my previous cardiologist about my ST-T wave inversion, he was dismissive about it, but a couple of doctors I spoke to express some concern...but no committal statements or explanations. 

    Any thoughts about this would be greatly welcomed.  

    Mike



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    Mike Kennedy
    TX
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  • 2.  RE: Am I getting the who picture?

    Posted 12-27-2024 06:27

    This must have been a very stressful procedure for you. "My wife tells me the door (doctor) came out of the lab with an excited tone telling her he was shocked I managed to even walk into the hospital that morning."



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    Victor Fabry, Founder
    Healed Hearts of New Jersey
    Short Hills, New Jersey
    fvfabry@gmail.com
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  • 3.  RE: Am I getting the who picture?

    Posted 12-27-2024 12:10

    Thanks Victor,  actually it was more relief (I imagine others might feel the same) after it was done.  I got more stressed as I discovered more information afterwards.  My wife did not tell me about the conversation with the interventional cardiologist for two months, my cardiologist only stated that I must be "tough" to endure the stress my heart was under during my follow-up visit a week later.  I only found out through my health insurance claims that it was an emergency.  The seriousness of what happened did not catch up with me until I told a physician I know and he said I was fortunate I did not go straight into surgery.  Now, my new cardiologist throws that question out there, I cannot help but think there is something somebody does not want to tell me.

    Learning this way has created more angst than anything else.  Which is unfortunate because people won't the care they need if they question the transparency of the process.  Also, it weighs down on any confidence I have in my care.  

    So I do not know if information is being kept from me or is this some way of not making me worry.  



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    Mike Kennedy
    TX
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  • 4.  RE: Am I getting the who picture?

    Posted 12-28-2024 17:06
    Interesting that I saw this in my inbox just now as I just got home earlier today after several days in the hospital due to atrial fibrillation that ended up leading to having to have a cardiac ablation. Although the doctor told my wife, and later, me, that everything went fine with the ablation, I have recollections of something happening while I was in the process of waking up from anesthesia.

    I remember as I was coming around that several nurses were working on me because I had aspirated and was having trouble breathing and then one of the nurses telling the recovery room nurse as they were handing me off "He went transcendental and also had a 'T.E.' during the procedure." I don't know what that means, and have tried googling it without success, but the way she said it sounded like it was something fairly concerning. Maybe if there's a nurse or a doctor in the group chat they could explain what it means. Maybe it's nothing to be concerned about.

    Anyway, this isn't the first time that I've found out later about something serious happening while I was under anesthesia and not being told about it by the doctor. I didn't find out until 3 months after my open-heart surgery that I had had a mild stroke while I was under for that. I had started asking questions about it because I noticed I was having a lot of memory problems after my OHS even though the heart surgeon and the nurses said everything went well (took a few months but I eventually recovered fully from that). Another time after being under anesthesia, as I was just waking up in the recovery room I heard one of the nurses tell the other one that she could go ahead and take her break and that nurse responded with "No! I'm not leaving him!". I remember thinking in my foggy state at the time that that was an odd thing to say. I found out later that my blood pressure had dropped to near zero during the procedure and that they had had trouble bringing me out of the anesthesia. The only way to know for sure what went on while you were under is to request your medical records from the hospital where you had your procedure, along with the doctor's notes. Everything that happened will (should) be in there.





  • 5.  RE: Am I getting the who picture?

    Posted 12-28-2024 17:21
    Thanks for sharing Brett. I looked at the notes in the portal and there is very little there.

    I’ve always had this feeling that I am not getting all the information. Physically fine but I feel different. People notice my behavior is different good and bad. The question from my new cardiologist seems to feed that belief. Why ask those questions? My complete chart was in front of him.



    Sent from my iPhone




  • 6.  RE: Am I getting the who picture?

    Posted 12-28-2024 17:42

    Brett:

    I was typing on my iPhone and it must have sent before I finished.  I am glad to hear you are home from the hospital.   I hope you get better soon!

    I think just going get everything I can get my hands on and let someone I know review it.  He is a physician.  He has expressed some concern about my care which I why I switched cardiologist.



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    Mike Kennedy
    TX
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  • 7.  RE: Am I getting the who picture?

    Posted 12-28-2024 20:46
    Mike,
    Excellent suggestion. Atrial Fibrillation can often be the result of open heart surgery or an ablation procedure. Gather all the results of your tests and records of completed studies and get a second opinion. You may find a new cardiologist, learn more about your condition and receive corrective medications.
    All the best,
    Vic

    Victor Fabry, Founder
    Greylock Advisors, LLC
    Healed Hearts of New Jersey





  • 8.  RE: Am I getting the who picture?

    Posted 12-30-2024 12:26
    Hi Mike. I think you are on the right path. It's definitely a good idea to get someone you trust to give you a second opinion.

    Wishing you a speedy recovery.

    Best regards,
    Brett





  • 9.  RE: Am I getting the who picture?

    Posted 12-30-2024 12:38
    I can totally relate, Mike. I've lost a lot of faith in doctors over the past few years between dealing with the heart issues and now cancer. They're always very vague in what they tell you and most definitely don't like it when you take the time to educate yourself on your condition and the various treatment options available. Most of them (not all) want to be the know-all/be-all of your health and absolutely don't like it when you question them on anything. I think some of it comes from arrogance and some of it comes from the fact that they are so afraid of getting sued that they've become extremely guarded in what they say and what information they will share with you. 





  • 10.  RE: Am I getting the who picture?

    Posted 12-30-2024 15:35

    I am sorry to hear about your cancer diagnosis.  Ironically, I work for physicians; so I see their world a little bit.  One of teachers were I worked used to tell students, "the patient didn't read the book" and it was their job to explain diagnosis, treatment, and management of care in a way the patient can be fully informed.  Too many doctors missed that day in medical school. 

    I totally understand where you are coming from.  There are doctors that would agree with you. 

    Thanks for sharing.  I hope your treatment goes well.   



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    Mike Kennedy
    TX
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  • 11.  RE: Am I getting the who picture?

    Posted 12-28-2024 19:20
    To Brett A TE could be an Esophageal Echocardiogram, check it out. I have called whoever did the procedure and asked any question I may have had about what happened Good Luck 🍀


    Sent from my iPad




  • 12.  RE: Am I getting the who picture?

    Posted 12-30-2024 09:13

    Hi Mike,

    The most important things I've learned since CABG are to be thankful for what I have and to just look forward. I've also seen that it's near impossible to get any information after leaving the cath lab.

    You may never be able to find out the details about what happened that day, but have you tried asking for a cath lab report from the hospital? 

    Happy holidays to you and your family! 



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    Raj P.
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  • 13.  RE: Am I getting the who picture?

    Posted 12-30-2024 13:07

    Hi Raj:

    Thanks for the comments.  I do feel very fortunate that I came through this physically stronger.  I probably turned the clock on my health 20 years at least.  I got a lot of good information about exercise and nutrition from my cardiac rehabilitation team and I forever grateful to them for their help.  But I do not feel the same if you know what I mean.  

    I think that no one but my wife would say anything until months later about just how critical my condition was is just confusing.  My first cardiologist was dismissive of my questions.  The physicians I have talked with expressed some concern as well.  Now, my new cardiologist asked if I had a heart attack as if he is seeing something that would prompt him to ask the question...this door just keeps opening when a comprehensive debrief would help me know what I am dealing with.  It feels defensive as if I am looking to blame someone or sue someone which is the last thing on my mind.  What I am looking for, or hoping for, is an explanation not just leaving me to wonder.  Because leaving me to wonder sometimes leads me to believe that I am the problem.

    Raj, I think you may be right I will never get an answer.  The reason I posted on this forum because I know many people here have gone through this themselves so I value the opinions here.    



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    Mike Kennedy
    TX
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