Hi Mike. I think you are on the right path. It's definitely a good idea to get someone you trust to give you a second opinion.
Wishing you a speedy recovery.
Best regards,
Brett
Original Message:
Sent: 12/28/2024 8:46:00 PM
From: Victor Fabry
Subject: RE: Am I getting the who picture?
Mike,
Excellent suggestion. Atrial Fibrillation can often be the result of open heart surgery or an ablation procedure. Gather all the results of your tests and records of completed studies and get a second opinion. You may find a new cardiologist, learn more about your condition and receive corrective medications.
All the best,
Vic
Victor Fabry, Founder
Greylock Advisors, LLC
Healed Hearts of New Jersey
Original Message:
Sent: 12/28/2024 5:42:00 PM
From: Mike Kennedy
Subject: RE: Am I getting the who picture?
Brett:
I was typing on my iPhone and it must have sent before I finished. I am glad to hear you are home from the hospital. I hope you get better soon!
I think just going get everything I can get my hands on and let someone I know review it. He is a physician. He has expressed some concern about my care which I why I switched cardiologist.
------------------------------
Mike Kennedy
TX
------------------------------
Original Message:
Sent: 12-28-2024 17:20
From: Mike Kennedy
Subject: Am I getting the who picture?
Thanks for sharing Brett. I looked at the notes in the portal and there is very little there.
I've always had this feeling that I am not getting all the information. Physically fine but I feel different. People notice my behavior is different good and bad. The question from my new cardiologist seems to feed that belief. Why ask those questions? My complete chart was in front of him.
Sent from my iPhone
Original Message:
Sent: 12/28/2024 5:06:00 PM
From: Brett Temple
Subject: RE: Am I getting the who picture?
Interesting that I saw this in my inbox just now as I just got home earlier today after several days in the hospital due to atrial fibrillation that ended up leading to having to have a cardiac ablation. Although the doctor told my wife, and later, me, that everything went fine with the ablation, I have recollections of something happening while I was in the process of waking up from anesthesia.
I remember as I was coming around that several nurses were working on me because I had aspirated and was having trouble breathing and then one of the nurses telling the recovery room nurse as they were handing me off "He went transcendental and also had a 'T.E.' during the procedure." I don't know what that means, and have tried googling it without success, but the way she said it sounded like it was something fairly concerning. Maybe if there's a nurse or a doctor in the group chat they could explain what it means. Maybe it's nothing to be concerned about.
Anyway, this isn't the first time that I've found out later about something serious happening while I was under anesthesia and not being told about it by the doctor. I didn't find out until 3 months after my open-heart surgery that I had had a mild stroke while I was under for that. I had started asking questions about it because I noticed I was having a lot of memory problems after my OHS even though the heart surgeon and the nurses said everything went well (took a few months but I eventually recovered fully from that). Another time after being under anesthesia, as I was just waking up in the recovery room I heard one of the nurses tell the other one that she could go ahead and take her break and that nurse responded with "No! I'm not leaving him!". I remember thinking in my foggy state at the time that that was an odd thing to say. I found out later that my blood pressure had dropped to near zero during the procedure and that they had had trouble bringing me out of the anesthesia. The only way to know for sure what went on while you were under is to request your medical records from the hospital where you had your procedure, along with the doctor's notes. Everything that happened will (should) be in there.
Original Message:
Sent: 12/27/2024 12:10:00 PM
From: Mike Kennedy
Subject: RE: Am I getting the who picture?
Thanks Victor, actually it was more relief (I imagine others might feel the same) after it was done. I got more stressed as I discovered more information afterwards. My wife did not tell me about the conversation with the interventional cardiologist for two months, my cardiologist only stated that I must be "tough" to endure the stress my heart was under during my follow-up visit a week later. I only found out through my health insurance claims that it was an emergency. The seriousness of what happened did not catch up with me until I told a physician I know and he said I was fortunate I did not go straight into surgery. Now, my new cardiologist throws that question out there, I cannot help but think there is something somebody does not want to tell me.
Learning this way has created more angst than anything else. Which is unfortunate because people won't the care they need if they question the transparency of the process. Also, it weighs down on any confidence I have in my care.
So I do not know if information is being kept from me or is this some way of not making me worry.
------------------------------
Mike Kennedy
TX
Original Message:
Sent: 12-27-2024 06:26
From: Victor Fabry
Subject: Am I getting the who picture?
This must have been a very stressful procedure for you. "My wife tells me the door (doctor) came out of the lab with an excited tone telling her he was shocked I managed to even walk into the hospital that morning."
------------------------------
Victor Fabry, Founder
Healed Hearts of New Jersey
Short Hills, New Jersey
fvfabry@gmail.com
Original Message:
Sent: 12-26-2024 20:52
From: Mike Kennedy
Subject: Am I getting the who picture?
I had my first appointment with a new cardiologist. As he was going through my chart, he asked me if I had a attack heart during my stent placement three years ago.
My response was I was never told this, so I also asked, "you tell me?" He did not answer and then asked me if I had passed out during the procedure. As he mentioned it, I remember having "the lights go out" so the speak during my time in the cath lab. I was awakened during the procedure...I remember seeing a staff person looking down at me with her hands out near each each side of my head. I heard really loud noise and then the doctor yelled, "I need you to breathe"...I took a breath and remember lights went out again, and I was awakened when it was over.
No one mentioned anything. My wife tells me the door came out of the lab with an excited tone telling her he was shocked I managed to even walk into the hospital that morning. One stent and three other arteries were worked on with no stents as they would not have helped. He tells her I could have died in the lab, but he never spoke to me.
Anyway, I have gone through a frustrating process of trying to get a complete picture of what happened. When I asked my previous cardiologist about my ST-T wave inversion, he was dismissive about it, but a couple of doctors I spoke to express some concern...but no committal statements or explanations.
Any thoughts about this would be greatly welcomed.
Mike
------------------------------
Mike Kennedy
TX
------------------------------