Dear Zandy, I'm so sorry for this unexpected medical need for your son that you thought was resolved. I'm sure this can feel so scary. I am a mom too but on the other side of things. I was born with a congenital heart defect 57 years ago - Tetralogy ...
I appreciate your words. I'm a chronic worrier..conversely, I am an eternal optimist. This new development has put me into a tail spin. I'm feeling better today. I know I'll feel better once we see the doctor again next week, I'll be able to ask more ...
I'm sorry about the sudden shock of the change of game plan. I'm sure it is very jarring for everyone. My daughter had coarctation of the aorta and aortic valve stenosis/univalve. She had open heart surgery at 5 days old. Other than 2 ballon caths, she ...
My 16yo son was born with 6 congenital heart defects we didn't know about until he went into distress immediately after being born. Three of the problems were able to be fixed, coarctation of the aorta, the vsd, and something else I can never remember. ...
Hi, I'm mum to 3 kids (+ one on the way) my eldest is 18 he was born with truncus (diagnosed at 4 days old, repair at 6 weeks old, endocarditis at 12 year old with repair and aortic valve replacement shortly after), a heart healthy 15 year old and ...
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