My 16yo son was born with 6 congenital heart defects we didn't know about until he went into distress immediately after being born. Three of the problems were able to be fixed, coarctation of the aorta, the vsd, and something else I can never remember. ...
Hi, I'm mum to 3 kids (+ one on the way) my eldest is 18 he was born with truncus (diagnosed at 4 days old, repair at 6 weeks old, endocarditis at 12 year old with repair and aortic valve replacement shortly after), a heart healthy 15 year old and ...
2 of my kids have an aortic valve fitted, one has a metal aortic valve and the other has the on-x valve fitted, we went through surgery last July with my youngest and she was home after just 6 days which was a huge shock to the system in itself sending ...
Dear Jennifer, I'm sorry your little one has to have surgery. I wanted to respond yo give you encouragement and hope. I'm an adult who was born with Tetralogy of Fallot which involved four abnormalities with the main two being a hole in my heart VSD ...
Hi all! New to the group and reaching out to see if there are other families that are going through or have gone through open heart surgery to repair both an ASD and PAPVR. Upcoming surgery and anxious - would like to connect and learn more about your ...
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