Welcome to the Open Heart Experience forum! This space is designed for us to come together and share our journeys through pre and post open heart surgeries (OH), offering support, understanding, and guidance to one another.
I've dedicated many years to advocating for better support services for post-OH patients, believing strongly in the importance of preparing individuals for what lies ahead after their hearts have been touched by surgery. I've found that the experience of undergoing open heart surgery can profoundly change us, altering the way we perceive and relate to our own hearts.
Like many of you, I've grappled with fears and uncertainties following my surgeries. At one point, I was even afraid to feel the beat of my own heart, constantly questioning its rhythm and function. I've coined the term "Cardiac Crippled" to describe the state of mind that can arise from such fears if left untreated, potentially crippling our quality of life.
However, I've been fortunate to have a strong support network outside of my cardiac team, which has helped me navigate these challenges over the past 37 years, during which I've undergone multiple surgeries and procedures. While my physical heart may have been through a lot, it's been my inner strength and willingness to seek mental health support that have truly carried me through.
I share my story not to frighten anyone, but to inspire courage. I've learned that courage is the antidote to fear, and it's something we can cultivate within ourselves. Despite the clicks, rattles, and irregular beats in my chest, I choose to focus on the fact that I'm still here, standing tall and breathing.
I've come to understand the power of my own thoughts and how they can influence my experiences. By directing my focus away from fear and towards gratitude and resilience, I've been able to reduce unnecessary visits to the ER and reclaim a sense of freedom in my life.
Recovery from open heart surgery is a journey, and it's normal to have concerns and questions along the way. Remember, you're not alone in this. We're all here to support each other and share our collective wisdom.
So, as you navigate this new chapter in your life, know that every feeling you're experiencing is valid. Take comfort in the small blessings, and trust in your body's ability to heal. And always remember, you are stronger than you think, and you have the power to overcome any challenge that comes your way.
Wishing you all strength, courage, and a speedy recovery.