Mended Hearts Open Forum

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  • 1.  Feeling Still-Fatigued After Your TAVR? You NEED to Read This.

    Posted 16 hours ago
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    Greetings Folks,

    If you thought the TAVR procedure would be the finish line. A new valve, a new lease on life but you're still struggling to catch your breath  and feeling worn out. It's not because your TAVR failed. It might be because it uncovered a second, hidden condition. I would  like to introduce you to Cardiac Amyloidosis-a condition where sticky, abnormal proteins build up in your heart muscle, making it stiff and preventing it from pumping properly.

    It's surprisingly common in TAVR patients (up to 16%), and its sympt

    TAVR & CARDIAC AMYLOIDOSIS ~An Deadly Combination

    oms-fatigue, shortness of breath, and leg swelling-are the exact same as what you felt before your procedure. It hides, making it easy to miss.

    Here's the game-changing info:

    1. A New Class of Medication: For the first time, we have highly effective treatments that can target this protein and stop the disease from progressing.
    2. It's Not Just "Getting Older": If you are still feeling the same symptoms months after your TAVR, it's time to find out why.
    3. Your TAVR was Step 1: It fixed the plumbing. If you have amyloidosis, you need Step 2 to fix the muscle.

    Don't wait for your symptoms to get worse. Start a conversation with your cardiologist that could change your entire recovery journey.



    ------------------------------
    Sally Cox
    Facilitator
    PNW Amyloidosis Support Group
    (206)819-3025
    info@pnwamyloidosis.com
    ------------------------------


  • 2.  RE: Feeling Still-Fatigued After Your TAVR? You NEED to Read This.

    Posted 15 hours ago
    Wow,thanks for that info, good to know♥️
    Sent from my iPad




  • 3.  RE: Feeling Still-Fatigued After Your TAVR? You NEED to Read This.

    Posted 2 hours ago
    my cardiologist mentioned amyloidosis....then promptly never spoke about it again....and then stopped talking entirely..........angiogram showed no blockage and he feels no complutsion to help me with the problems i came to him originally for.....

    for the 2nd time i think i was nothing more than quick money for cardio and hospital....easy to get a procedure but absolutely no follow up.......

    but again he brought up amyloidosis as a possible source of my probs....kinda like he just read about it in Popular Medicine!






  • 4.  RE: Feeling Still-Fatigued After Your TAVR? You NEED to Read This.

    Posted 2 hours ago
    I had a aortic valve replacement at Cleveland Clinic. They wanted me to be followed up by my cardiologist when I got home 3 weeks post op. When he told me that he would see me after 3 months I promptly found a new cardiologist, who is stellar! Maybe it's time for a new cardiologist??❤️‍🩹Stay strong and good luck Warmly, Mary
    Sent from my iPad