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MISDIAGNOSED with HYPERTROPHIC CARDIOMYOPATHY? Something to consider ...

  • 1.  MISDIAGNOSED with HYPERTROPHIC CARDIOMYOPATHY? Something to consider ...

    Posted 08-15-2025 14:55

    Cardiac amyloidosis should be considered- I was misdiagnosed with hypertrophic cardiomyopathy(HC) 6 yrs ago & it took way too many cardiologist to figure out I had cardiac amyloidosis which comes with a host of other symptoms on top of afib including spinal stenosis, swelling in feet, legs, belly, bruising, low voltage ECG, carpal tunnel, poor appetite & bloating. If you have any of these in addition to your HC please ask to be screen for amyloidosis. Ask for these tests- 

    Data from Survey of Cardiac Amyloidosis Patients

     3 blood & urine tests; SIFE/SFLC/UPEP .



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    Sally Cox
    Facilitator
    PNW Amyloidosis Support Group
    (206)819-3025
    info@pnwamyloidosis.com
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