Mended Hearts Open Forum

I have a history of SV ASD & PAPVR. 11 years after my open heart surgery and repair it was recommended that I get a single lead atrial pacemaker for sinus node dysfunction. After 10 years the battery was depleted as expected, but the surgeon recommended that the surgical pocket be moved from under the muscle to under the skin saying that cutting into the muscle so many times would atrophy it. Now 8 months after replacement I have scar tissue in my subclavian where the pacemaker lead is inserted and it is moderately occluding my subclavian causing swelling and discoloration of my arm that I've also happened to have multiple DVTs in. I am 31 years old and work as a Registered Nurse. All of this has recently triggered an awareness that my congenital heart issues will be life long and sometimes the outcomes will be good and sometimes the outcomes will not be so good especially because I have other chronic illnesses that require lots of attention. Please provide support.  

I have a history of SV ASD & PAPVR. 11 years after my open heart surgery and repair it was recommended that I get a single lead atrial pacemaker for sinus node dysfunction. After 10 years the battery was depleted as expected, but the surgeon recommended that the surgical pocket be moved from under the muscle to under the skin saying that cutting into the muscle so many times would atrophy it. Now 8 months after replacement I have scar tissue in my subclavian where the pacemaker lead is inserted and it is moderately occluding my subclavian causing swelling and discoloration of my arm that I've also happened to have multiple DVTs in. I am 31 years old and work as a Registered Nurse. All of this has recently triggered an awareness that my congenital heart issues will be life long and sometimes the outcomes will be good and sometimes the outcomes will not be so good especially because I have other chronic illnesses that require lots of attention. Please provide support.  

I have a history of SV ASD & PAPVR. 11 years after my open heart surgery and repair it was recommended that I get a single lead atrial pacemaker for sinus node dysfunction. After 10 years the battery was depleted as expected, but the surgeon recommended that the surgical pocket be moved from under the muscle to under the skin saying that cutting into the muscle so many times would atrophy it. Now 8 months after replacement I have scar tissue in my subclavian where the pacemaker lead is inserted and it is moderately occluding my subclavian causing swelling and discoloration of my arm that I've also happened to have multiple DVTs in. I am 31 years old and work as a Registered Nurse. All of this has recently triggered an awareness that my congenital heart issues will be life long and sometimes the outcomes will be good and sometimes the outcomes will not be so good especially because I have other chronic illnesses that require lots of attention. Please provide support.