Thanks, Cheryl. After my last procedure, my doctor said he'd find a group for me. Apparently, my hospital-- which is huge!--doesn't have support groups. I'd actually prefer one at a different hospital because I'm not sure I trust the confidentiality of these groups and don't want any questions about hesitation to get back to the vetting committee at my hospital. I'm traveling right now, but should have some time this weekend to dump my questions on you. 😏 Much appreciated.
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Deane
CHF, potential transplant candidate
NYC
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Original Message:
Sent: 11-29-2022 12:45
From: Cheryl Lachelt
Subject: Pre-Transplant Support Group
Hi Deane,
Have you checked with your cardiology team regarding support groups connected with your transplant hospital? I received a heart transplant at the University of MN Medical Center and participate in a support group that's facilitated by the transplant social workers. It's intended for transplant and pre-transplant patients.
If you're interested, I'd be happy to chat with you to try to answer some of your "crazy" questions. Hope you're doing well.
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Cheryl Lachelt
Burnsville MN
Original Message:
Sent: 10-18-2022 19:50
From: Deane Gross
Subject: Pre-Transplant Support Group
Greetings, all! I am at the very earliest stages of vetting for a heart transplant. I'm a 70yo woman with CHF and a pacemaker, otherwise pretty healthy. I've never had a heart attack, per se, but I did have an extreme ventricular arrhythmia earlier this. TG for my pacemaker, which shocked me three times and saved my life! I'd like to find a support group, preferably live online, where I can ask all my (crazy) questions. Is there such a thing? At best, I have found places to ask a question, but no open discussion groups. I would attend in-person meetings in NYC but prefer online. TIA and best wishes for good health to all!
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Deane Gross
New York
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