Cardiac Amyloidosis Forum

TAVR & CARDIAC AMYLOIDOSIS ~A Deadly Combination

  • 1.  TAVR & CARDIAC AMYLOIDOSIS ~A Deadly Combination

    Posted an hour ago

    Greetings Folks,

    If you thought the TAVR procedure would be the finish line. A new valve, a new lease on life but you're still struggling to catch your breath  and feeling worn out. It's not because your TAVR failed. It might be because it uncovered a second, hidden condition. I would  like to introduce you to Cardiac Amyloidosis-a condition where sticky, abnormal proteins build up in your heart muscle, making it stiff and preventing it from pumping properly. My name is Sally and I'm working on raising awareness of this deadly, under diagnosed disease.

    It's surprisingly common in TAVR patients (up to 16%), and its symptoms-fatigue, shortness of breath, and leg swelling-are the exact same as what you felt before your procedure. It hides, making it easy to miss.

    Here's the game-changing info:

    1. A New Class of Medication: For the first time, we have highly effective treatments that can target this protein and stop the disease from progressing.
    2. It's Not Just "Getting Older": If you are still feeling the same symptoms months after your TAVR, it's time to find out why.
    3. Your TAVR was Step 1: It fixed the plumbing. If you have amyloidosis, you need Step 2 to fix the muscle.

    Don't wait for your symptoms to get worse. Start a conversation with your cardiologist that could change your entire recovery journey.

    Ask the question that matters: "Could my symptoms be cardiac amyloidosis?"

    For more info  : About Amyloidosis - Amyloidosis Research Consortium

    TAVR & CARDIAC AMYLOIDOSIS a KILLER COMBINATION


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    Sally Cox
    Facilitator
    PNW Amyloidosis Support Group
    (206)819-3025
    info@pnwamyloidosis.com
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