My 16yo son, Zayden, was born with 6 congenital heart defects we didn't know about until he went into distress after being born. Three of the problems were able to be fixed, coarctation of the aorta, the vsd, and something else I can never remember. He still has Ebstein's anomaly, total anomalous pulmonary venous return (TAPVR), and a bicuspid aortic valve...my sweet baby. For all intents and purposes, he was a regular kid after the surgeries; no medications, minimal restrictions. And what little restrictions he had were all lifted when he was 5. Up until last year I had basically forgotten he was a heart patient except for his check ups. I didn't realize surgery was back on the table and in fact a reality that will have to happen again, possibly soon. I was in shock. Almost as if this were a whole new illness I was just hearing about. Now I find out his heart has enlarged. And in fact, "we have to stop dragging our feet," when I didn't realize anyone was dragging their feet about anything. I thought this was just another check up. Now I'm scared and I never really was before. Before, things happened too fast to be able to think about them. Now, I'm careening into this fast approaching situation and I feel out of control because now this MRI has to happen next week! But everything is completely normal because I can't scare him with it. So now I'm looking at resources my cardiologist was suggesting 16 years ago. Now I'm reaching out because I'm scared.