Mended Little Hearts Open Forum

My son is 17 years old and has Hypoplastic Left Heart Syndrome. He has faced many obstacles over his life but is a survivor. He just started his senior year and is being sought after from multiple colleges for his academic achievements. I would love to ...

Hi Kayla, First off I just want to say that I'm hoping for the absolute best for your little one and am sending you the biggest hug. My son is 7 months old and had open heart surgery at 5 weeks. He has a hypoplastic left side of his heart and required ...

Hey all, My name is Kayla aka Levi's mom. my sons case manager suggested I join this group- encouraging me to trauma dump on people who understand where my feelings of anxiety and stress come from. Apparently it's not normal for a mom to spend nights ...

Hey- I am also a parent struggling with stress related to a child's heart defect. My husband and I have other children who didn't go through heart stuff and honestly. It's all hard, it's exhausting taking care of others needs before your own. A social ...

Hi Marcy! My name is Jenn Angelone. I live in Hudson MA, welcome to Boston! I'm a heart patient at Children's as well as a mental health therapist - I've worked extensively with children on the spectrum AND with anxiety/ OCD. Most recently I've started ...