Hi Charles. I know how you feel. Pretty sure I have the same thing (going for testing this week to confirm). Apparently it's a very rare disease which makes it difficult to find any real answers on it. I did find some great resources that I think may help you (they helped me a lot):
https://www.youtube.com/channel/UCLfudB_bd3b_F170VRsCGng
www.AmyloidosisSupport.org
Best regards,
Brett
------------------------------
Brett Temple
Project Manager
Sarasota FL
------------------------------
Original Message:
Sent: 05-10-2021 22:58
From: Charles Mazur
Subject: Cardiac Amyloidosis
I recently been diagnosed with Cardiac Amyloidosis. I've had CHF since 2017 they ran some test and came up with the name of what I have. Does anyone else have or know about this disease, all I know I'd google has nothing good to say about this diagnosis. Any info would be helpful thank you Charles
Sent from my iPhone