Hi LalaI want to share my experience with you even though we don't have the same diagnose. I'm 53 years old now. I had my 1st child at age 36. I had no idea I had a heart problem. I had all kinds of issues with that pregnancy. I ended up going into labor early. The doctors were able to keep her in until 34 weeks, but then there was no stopping her. My doctor wasn't able to really explain the situation because my placenta was healthy. By the grace of God she was a healthy premie and now a healthy teenager. My 2nd child came 15 1/2 months later…..oops. That pregnancy was much better except that I have never been so tired in my life. I slept like I never got enough sleep. Again, I had no idea I had heart problems. I had a full term pregnancy with her, but she was jaundice for a week. By the grace of God, she too is a healthy teenager!
Fast forward to age 49. I found out I had a large hole in my heart. I was referred to the Mayo Clinic. After my appointment with the chief cardiologist, and everything I described my pregnancy experiences, she said if she was my doctor, she would have recommended that I not have babies. I'm actually putting that conversation mildly. It was actually a very painful conversation to have. I still cry when I think about the things we talked about.With that being said, I'm repaired and healthy, my daughters are beautiful and healthy, I was able to survive and I have my kids. I don't know what you can take from my story, but I connected to the devastation of hearing you shouldn't have children. Honestly, I think your so young and should just live healthy for now and see what happens. Live life to the fullest and even if you don't have children for another 6 years, things my pan out in your favor naturally. 28 years old is the perfect age to travel and live carefree. You have plenty of time before you start your family. Much love and support on your heart healthy journey.Carrie