Hello Gaydon,
I have also been treated for an Auto Immune onset of Pericarditis unrelated to a Heart Malady/Disease valve issue like yours at the Mayo Clinic of Jacksonville, FL. The Excruciating Pain for me was worse than giving Birth to my Babies and I was treated with a Non-Steroidal Anti-Inflammatory Medicine that is called Indomethacine(Imdometacin)
I was told that I would need to be patient with the Drug as it might take some time 7-10 days (for me 2-3 weeks) to make an effect on the Infection that had Invaded my Hearts Pericardium. Included in the diagnosis were some very interesting Life Habits which would affect the Drugs outcome even better.
Firstly I would need to brush my teeth 3 X a Day (I was a 2X a Day Brusher Prior) using a Whitening Toothpaste and not to swallow as I was Brushing my Teeth but to rinse thoroughly and completely expelling the solution of Toothpaste and Saliva as I Brushed. I was to NEVER Refill another H20 Bottle as long as I lived. Something I did regularly from our Fridges Filtered H20 Spicot.
Secondly Drinking only Fresh Room Temperature Berkey Drip or Bottled H20 that included Alkaline in it's chemical make up. H20 Bottles that are drank from and then left in a vehicle or a bag for more than a couple of hours are prone to Bacterial & Viral contaminations that are then ingested when we drink the water unknowingly.
Thirdly every Fruit or Vegetable or Piece of Meat I would ever eat again had to be rinsed in a White Vinegar solution to remove the Field Contaminates/Insecticide Sprays and Slaughter house contaminates that might remain on the food item.
Finally I was to wash my Hands or use Hand Sanitizer regularly up to 10 times a day.(this was way Pre-China Virus) The specific type of Infection was identified in Bloodwork as a common food/waterborne bacteria that I was unable to fight off or counteract with my low white blood cell count due to my Auto-Immune disorder.
After the Mystery was solved, the Medicine Indomethacin worked like a charm and I never had Pericarditis again, and now I am so glad to be able to share my unfortunate Pericarditis story with you in hopes that possibly the Non-Steroidal Anti-Inflammatory Drug that helped me could quite possibly help you also . . . Keep me posted ! 0 : )
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Robin Gage
Board Member
Heart Failure Society of America
Lakeland FL
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Original Message:
Sent: 03-28-2021 14:17
From: gaydon jones
Subject: Recurrent pericarditis after AVR
Hi!
I'm new this group. I had an AVR 12/11/2021
and 3 weeks after I had my first pericarditis. Now I'm finishing my 3rd bout and I'm about to lose my mind. The pain is worse for me than the actual surgery. I'm 44, born with a bicuspid aortic valve, always exercised and did not have any other health concerns prior to surgery. I've been treated with Steroids the first time, Ibuprofen the second time and aspirin this time.
the last echo showed EF 60% etc with no evidence of constriction.
I'm tired, anxiety is in overdrive, depressed etc.
Has anyone had this much trouble and lived to tell the tale?
Thanks in advance...
Gaydon
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gaydon jones
RN
Adventhealth
winter springs
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