Mended Little Hearts Open Forum

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  • 1.  O2 issues and peds to adult

    Posted 01-15-2020 13:12
    Hello, my son has had multiple surgeries and defects but the one that is ongoing is aortic stenosis. He had leaflets opened up again a year and a half ago but a tee showed bicuspid in March. Recently came down with cellulitis and spot is getting smaller but o2 is dropping into 80's w a little bit of walking. Can a valve situation do this quickly? He's on antibiotics and valve is still Stenotic. 2nd ques: if he just turned 18 can I still get second opinions at peds centers for congenital heart? Thanks!

    Teresa White
    Jacksonville FL
    (904) 233-1512

  • 2.  RE: O2 issues and peds to adult

    Posted 01-16-2020 08:40
    I am 51 years old and still see a pediatric cardiologist 

    Robin Davis

    Merck & Co. Inc.

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  • 3.  RE: O2 issues and peds to adult

    Posted 01-17-2020 08:03
    My Daughter is 23 and still sees her pediatric cardiologist. She can stay there as she has no complications as an adult. They are an amazing group , I am thrilled she can still see them.

    Peggy McDonald
    Wee Can Preschool & Childcare
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  • 4.  RE: O2 issues and peds to adult

    Posted 01-16-2020 11:06
    Many of the good peds CHD centers have adult CHD programs too.  I would contact one.  A second opinion from a well-respected CHD center is always a good thing. I think, if valves are not working well, infections can happen more easily.  I know that to be true with endocarditis.  

    I hope you get some good answers.  There are many more things they can do with aortic valves these days.

    Jodi Smith

    Jodi Smith
    Program Director
    The Mended Hearts, Inc.
    Richmond VA
    (804) 647-3830