Mended Hearts Open Forum

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  • An Update. I went to Hospital this week for an appointment, consultant believes my dilation could be caused by Anderson-Fabry disease? https://pubmed.ncbi.nlm.nih.gov/19850557/ This link explains that in a study of 106 patients with Fabry disease, ...

  • Amy, you may have to call for EMS to go to the hospital in an ambulance. Be very sure to tell the EMS personnel and the emergency room doctor that you are having trouble breathing and can't get your breath. You can buy one of the oxygen level detectors. ...

  • Hi there, I just wanted to followup with the group since my last post abt 3(?) wks ago. Nothing much diff yet. As I may have mentioned, the way my 3.9cm was found was thru having an echo on my heart due to a syncope episode I had in early November. ...

  • Very constructive feedback here from everyone.  A few things I want to underscore: 3.8 is quite small.  Given normal growth rates you are possibly looking at 20+ years before anything needs to be done, if ever.  Beta Blockers are used for AA patients ...

  • thank you all for participating in this discussion. the fact that others are going through the same anxiety as you is helpful; this is what Mended Hearts and this forum is all about. My heart condition is another issue. It is important to have ...