Mended Little Hearts Open Forum

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  • I completely understand what you mean. We've had a similar situation with our son and I, too, was shocked when at 16 I was told he needed open heart surgery to replace his pulmonary valve and put a band around his tricuspid valve (because his heart was ...

  • Hello Peggy, I just noticed that it appears nobody responded to your post. I'm sorry. Even though this is very late, I thought you might want to hear from someone. I am glad your daughter was doing well when you posted and I hope she is still doing ...

  • Hello Ray, I'm sorry that I'm just seeing this now so please forgive my delay in responding. I was born with Tetralogy of Fallot 57 years ago. Yes, Pulmonary stenosis (narrowing) or pulmonary atresia (closure) is one of the 4 defects of Tetralogy ...

  • Pleased to join everybody. My son Reese had VSD repair surgery at CHOP in September 2020. ------------------------------ Ryan Igbanol - parent of VSD surgery survivor and thriver Founder Great American Service Franchises LLC Downingtown, PA 19335 ...

  • Hello- my boy has been diagnosed with ToF at 25 weeks gestation. I am trying to understand if the ToF is being complicated with other issues suck as Pulmonary Atresia or MAPCAS or other, and I'm not sure I'm able to interpret the notes correctly. We ...

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