To members and care providing
Being Mrs sole primary care-provider with achieving daily multiple activities for over ten years as she has Primary Progressive MS, PPMS, with severe damage to the frontal lobe causing cognitive issues has/is not easy and a daily challenge and takes effort and currently is being diminished daily as I have to now take care of my health " Your mask on first …" which is contrary to how I was. Yes, currently I'm unable to achieve as I did prior and it's not easy to dislocate from my care provider activities.
With no network and knowing our current circumstances independently we are slowly getting on with the 'on-the-job training' OJT working through what we are able to achieve and letting go of others.
Mrs with her MS brain has her own cognitive issues/depression to deal with.
Currently we are not each others greatest supporters. This will pass!
Background I'm 72: I'd had a mitral valve prolapse with no symptoms for over 40 years. In 2020 I had both hips replaced due arthritis and believe this led to the DVT and saddle pulmonary embolism PE, which medicals won't admit too, which let to open heart 3/23/2022. Both valves replaced, aorta repaired, by-pass, stabilized through shocking, pacemaker; ten days inpatient. Outpatient, 14 days with a Foley catheter and the left lung drained which was very unpleasant. Completed cardio rehab with good results. So physically doing well.
Recently, after three months post-surgery through myself awareness and recognizing cognitive disfunction after the open heart surgery and my in-depth research I recognize I'm not myself cognitively. Similar as expressed by others, my thoughts being very negative, why did I have surgery, what was the point, why am I here, no future? I have lost interest in things, forgetting words and spelling, slight short term memory loss, don't want to be around people, have little tolerance, get impatient quickly ….
The post-surgery mental-ness is known by cardiologists who at pre-consultation fail to mention.
My Brain is recuperating [thawing = the process of becoming friendlier or more cordial]
// Being aware and attempting to regain positivity+// Warm Regards Derek
Pacemaker tune - up Went to Nashville for the pacemaker eval and tune-up today.
Technology check-up took 20 minutes. My travel, return trip 160 miles.
The technology is amazing, everything is done via an IPAD-Wi fi.
I was seen by the number one expert who did a lot of talking and keying the IPAD.
I felt nothing. As I was told it wasn't about me, it was precautionary and only about the pacemaker.
FROM TWO WEEKS AGO's EVAL -- the heart, from the pacemaker, has two wires attached, one upper chamber, one lower. The lower wire with two electrodes [bipolar] was reading off the higher [also bipolar] called cross talking and reporting back to the pacemaker which in turn sends out, via Wifi satellite the measurements, graphs …whatever, to a main frame. And today's visit was to see what was happening and fix as necessary.
I don't recall and have no idea what the measurements or ranges are. The lower had been set at 0.6 during the initial implant in April. Today the lower wire was changed to unipolar [one] and tuned to 1.2 somethings. Upper not changed.
Eventually, I will receive a mobile wifi box which is connected to house electric socket. Box will send out data to a mainframe. Due to supply chain issues the Box has been on backorder since April. When I get a box the office visits will not be required till then my next tech eval Dec. BTW Tech company does bill med ins only for mobile readings.It is absolutely amazing how all of this works! As long as the techno staff are on the job is what counts.// Being aware and attempting to regain positivity+// Regards