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Posted 08-10-2022 11:46
Hi there, my son just had a Ross Konno procedure on Tuesday the 8th. We are currently at Doernbechers Children's Hospital in Portland, OR.
Byren is currently in the ICU as I sit here by his side and try to imagine what he's been through, not only this surgery, but all his surgeries and procedures since he was 2 weeks old. He has a rare heart disease call shones complex. I joined this forum to try to connect with someone or a family in a similar situation. I thought maybe some day he will have a friend that shares the same struggles in life and give each other hope and props to continue to charge and do what kids without a heart condition do. Hope the best for all of you out there!. Stay strong and willing to better yourselves with the help we have these days. Thank you. God bless.
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