Hi, I am also a newbie to this group. Thirteen years ago, by a fluke, I was diagnosed with an ascending aortic aneurysm via and Echo, it measured around 4.6 cm. A follow-up Echo three months later, showed that it had grown. I immediately made an appointment at the Mayo Clinic. A CT scan confirmed the aneurysm, but the surgeon did not feel that there at been any growth in the aneurysm - it appeared that way because of the differing angles of the Echo. But the surgeon, at that time, also discovered that I had a bicuspid aortic valve. This began thirteen years of monitoring the aneurysm and the valve. For the most part - everything continued to be stable until this past year when I developed Afib. The Afib is an electrical issue because a Nuclear Stress Test showed that my heart is receiving good blood flow throughout, and my Afib has not yet changed the size of my upper chambers. The aneurysm is now measuring 5 cm (by an Echo measurement) - which is the tipping point when the risks of the aneurysm outweigh the risks of surgery. Also, in seeking to control the Afib, an oblation might cause a dissection of the aneurysm. So my doctors are recommending I proceed with Open Heart surgery. I will be back down to Mayo next week for a CT scan, blood work and an EKG 0 then a meeting with both my surgeon and my cardiologist. At that time surgery will be scheduled. The surgery will fix the aneurysm and clip off the appendage where blood clots can form - for sure. It may also entail an oblation procedure. I am not sure if they will do anything with the valve since it continues to function without any regurgitation. At a recent meeting, I was told that it was functioning better than anything they could replace it with. So, we will see if that has changed.
I am certainly anxious about what is ahead of me, but I am confident that I am in good hands. I am trying to gather as much information as I can so that I am as prepared as I can be about what surgery and recovery will entail. I would appreciate any insights that any can share with me. I would especially be interested in knowing about any other online support groups that might be available - something in a Zoom format, maybe.
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David Nelson
Annandale MN
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Original Message:
Sent: 06-19-2020 23:02
From: Melissa Karr
Subject: ascending aortic aneurysm
Hi--I'm a newbie to the group. I have had ongoing crazy blood pressure issues, crappy family history, lots of med changes and finally had an echo; found out I have an ascending aortic aneurysm- 3.7. I was diagnosed literally a week before all the COVID stuff shut everything down, so have just been dealing with reading lots of info online and sorting out priorities. I had my second appointment today and told my dr that I've been having a few times where its hard to breathe (but it could be COVID and masks or anxiety), and also some swelling in my feet and lower legs. I have never shied away from anything and was all ready to kind of push to an earlier surgery ( I'm only 63), but my dr was pretty up front about the dangers of surgery vs possible danger of dissection, so am resigned to the wait and see, get an echo, wait and see game. Lots of anxiety, and pretty sure no one really gets how serious this is. Am I crazy or did others feel under-appreciated with this diagnosis? Thanks--Melissa
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Melissa Karr
Business owner/musician
Iowa City IA
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