Mended Hearts Open Forum

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  • We are working to learn more about a person's journey with mitral, tricuspid, and aortic valve disease. We have created a short survey to help us understand what the valve disease journey looks like, and we need your input! Please take 10 ...

  • Keep me posted. I care. ------------------------------ Sally Cox Facilitator PNW Amyloidosis Support Group (206)819-3025 info@pnwamyloidosis.com ------------------------------

  • Sally, thanks ...ur the bomb......'preciate it and take ur advice tim

  • Hey Tim, PCP- USE the Patient Portal- I suggest you send your list of symptoms - use the checklist I sent you - and ask for an ASAP referral. Please let them know cardiac amyloidosis is a medical emergency and should be triaged as such. YOU should not ...

  • Tamika told me i have to get a PCP to refer me for testing for amylodisis...i have no idea why the BSW cardiologist who brought up amylodisis won't refer me. * I guess he is Tamika's boss....i could tell she was kind of at the end of what she could ...