Keep me posted. I care. ------------------------------ Sally Cox Facilitator PNW Amyloidosis Support Group (206)819-3025 info@pnwamyloidosis.com ------------------------------
Sally, thanks ...ur the bomb......'preciate it and take ur advice tim
Hey Tim, PCP- USE the Patient Portal- I suggest you send your list of symptoms - use the checklist I sent you - and ask for an ASAP referral. Please let them know cardiac amyloidosis is a medical emergency and should be triaged as such. YOU should not ...
Tamika told me i have to get a PCP to refer me for testing for amylodisis...i have no idea why the BSW cardiologist who brought up amylodisis won't refer me. * I guess he is Tamika's boss....i could tell she was kind of at the end of what she could ...
i did speak to Tamika . the problem is the cardiologist has exactly 0 follow thru...since angiogram revealed no blockage he immediately dropped me as a patient and had no follow on recommendations or case notes about amylodisis or any of my other symptoms. ...