Mended Little Hearts Open Forum

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  • Hello! I am interested in hearing any parent's experience with the Ross Procedure? My 2 year old is being referred for a Ross for severe aortic regurgitation after having aortic valve repair 2 years ago. The other option would be an Osaki procedure but ...

  • Hi Bess, Thank you for joining. I'm so sorry to hear that your son and family have been going through this and that you haven't been receiving support. We do have a Mended Little Hearts group in St. Antonio that I would like to connect you with, and ...

  • Hi Everyone, My eight year old has Wolff Parkinson White Syndrome. He has an ablation at three that did not work and recently had another that did not work. His EP says that it's the most complicated pathway he's seen in twenty years of ablations, ...

  • My son is 17 years old and has Hypoplastic Left Heart Syndrome. He has faced many obstacles over his life but is a survivor. He just started his senior year and is being sought after from multiple colleges for his academic achievements. I would love to ...

  • Hi Kayla, First off I just want to say that I'm hoping for the absolute best for your little one and am sending you the biggest hug. My son is 7 months old and had open heart surgery at 5 weeks. He has a hypoplastic left side of his heart and required ...

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