Mended Little Hearts Open Forum

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  • Pleased to join everybody. My son Reese had VSD repair surgery at CHOP in September 2020. ------------------------------ Ryan Igbanol - parent of VSD surgery survivor and thriver Founder Great American Service Franchises LLC Downingtown, PA 19335 ...

  • Hello- my boy has been diagnosed with ToF at 25 weeks gestation. I am trying to understand if the ToF is being complicated with other issues suck as Pulmonary Atresia or MAPCAS or other, and I'm not sure I'm able to interpret the notes correctly. We ...

  • Dear Zandy, I'm so sorry for this unexpected medical need for your son that you thought was resolved. I'm sure this can feel so scary. I am a mom too but on the other side of things. I was born with a congenital heart defect 57 years ago - Tetralogy ...

  • I appreciate your words. I'm a chronic worrier..conversely, I am an eternal optimist. This new development has put me into a tail spin. I'm feeling better today. I know I'll feel better once we see the doctor again next week, I'll be able to ask more ...

  • I'm sorry about the sudden shock of the change of game plan. I'm sure it is very jarring for everyone. My daughter had coarctation of the aorta and aortic valve stenosis/univalve. She had open heart surgery at 5 days old. Other than 2 ballon caths, she ...

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