Mended Little Hearts Open Forum

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  • Dear Jennifer, I'm sorry your little one has to have surgery. I wanted to respond yo give you encouragement and hope. I'm an adult who was born with Tetralogy of Fallot which involved four abnormalities with the main two being a hole in my heart VSD ...

  • Hi all! New to the group and reaching out to see if there are other families that are going through or have gone through open heart surgery to repair both an ASD and PAPVR. Upcoming surgery and anxious - would like to connect and learn more about your ...

  • Hey everyone! So, I went ahead and started up a Youtube channel to share my story and shed some light on what it's like dealing with a chronic heart condition while being young. I think is imperative to young people that struggle with this due to ...

  • My HW goes to the Bill Neeches Heart Camp in Western PA. It's early June, sleep away camp. He has a blast every year! ------------------------------ Lauren ------------------------------

  • Hi Desire! Thank you for starting a thread about summer camps for heart warriors! Our camp, Hope With Heart , is excited to be celebrating our 35th year of operation this summer! We host a week-long sleep-away camp and the best part is, our camp is ...

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