Mended Hearts Open Forum

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  • Thanks for this interesting information! ------------------------------ carlo pinini Engineer TDLS Miami FL ------------------------------

  • An Update. I went to Hospital this week for an appointment, consultant believes my dilation could be caused by Anderson-Fabry disease? https://pubmed.ncbi.nlm.nih.gov/19850557/ This link explains that in a study of 106 patients with Fabry disease, ...

  • Amy, you may have to call for EMS to go to the hospital in an ambulance. Be very sure to tell the EMS personnel and the emergency room doctor that you are having trouble breathing and can't get your breath. You can buy one of the oxygen level detectors. ...

  • Hi there, I just wanted to followup with the group since my last post abt 3(?) wks ago. Nothing much diff yet. As I may have mentioned, the way my 3.9cm was found was thru having an echo on my heart due to a syncope episode I had in early November. ...

  • Very constructive feedback here from everyone.  A few things I want to underscore: 3.8 is quite small.  Given normal growth rates you are possibly looking at 20+ years before anything needs to be done, if ever.  Beta Blockers are used for AA patients ...