My name is Ashley Camacho, wife of Juan Camacho, & mother to 5 beautiful babies 💜💙💙👼💙
Our 2nd to last was a miscarriage but our Rainbow Baby ended up being a Heart Warrior as well ❤️🩹💪❤️💙🫀 We wanted to share his journey & help share awareness and support for others like him 💯❤️
Josiah's CHD STORY>>>>>>>>>>>>
My name is Josiah Camacho. I was born the day before thanksgiving, November 24th, 2021. My mom & dad (Ashley & Juan) soon found out, my life would be a little more challenging than ever expected.
My mother went into labor around 11pm the evening before and checked into Citrus Memorial Hospital (now HCA of Citrus) around 430am. I was born at 7:24am 6lbs 30z & 19 1/2in Long as mom & dads Rainbow Baby/Thanksgiving Baby.
A few hours later, my dad had been noticing that my breathing was still not quite right so he asked the nurses and doctors to take another look at me. There were times I began to turn blue, but it was only slightly, but it made my parents quite nervous.
The doctor could tell my heart sounded entirely too loud and my breathing was off a bit. They suspected a Heart Mumor but because they did not have the pediatric care or a pediatric cardiologist to even begin to figure out what was wrong, so I was shortly flown off to Shand's Children's Hospital a few hours later to figure out what was going on.
That evening, my parents were told I had a (CCHD) Criticial Congential Heart Disease w/ Heart defects & they needed to do many more tests & research to figure out what all was wrong & what they could do to try & fix it.
Truncus Arteriosus Type A3, w/ a VSD (Ventricular Septal Defect) & a Right Aortic Arch, Right & Left Pulmonary Artery Stenosis, & Pulmonary Hypertension.
Since receiving this news, I had stayed in the hospital since birth for 51 days. During my stay, they performed my 1st OHS (Open Heart Surgery) on 12/9/21 to attempt to Repair the Truncus, patch the VSD, & Implant a Conduit to act as his second main artery, as well as check everything else out while in there. They did find that a few weeks from there he would need to a Cathedar Surgery to implant a Stent in each of his Pulmonary Arteries, that was performed on one of my big brother's birthday (Matthew) 1/4/22 when I was 6 weeks old. I was able to finally go home on 1/14/22 and though I missed the holidays with my family, I hope to be able to spend my 1st true holidays with them as the year goes by.
I had my 2nd Cath. Surgery 9/6/22 to attempt in ballooning both of my stents in the pulmonary arteries but they found they couldn't expand them or my arteries that connected to them either...this led to a conference with his entire team to discuss what to do next ..
At home I have my mom, dad, 4 sibilings, and our French Bull Dog "Marz" 💜💙💜💙💙👼🐾 I have 3 brothers and one sister, Autumn-lynn, Matthew, and Isaiah. I would have another sibling here with us right before me, but Angel Baby Alex, was needed in heaven before he could make his arrival.
My life can be challenging for everyone in our family but we are pushing each and everyday & we just would like to spread awareness & help other families going through similar life challenges. We have wanted to show others that even though some days it may be easier said than done, but you will get through it, just don't give up!!
*****New Update Added 10/25/22:
My 2nd OHS is scheduled for November 1st 2022, this is the conclusion to the conference they had after finding they were unable to expand my stents more and found my arteries were still too narrow. They said the right side of my heart is also still working harder than the other. This will be another extensive open heart surgery to replace everything all over again 💪❤️💙🫀 I will need to be intubated & all for a little while, even after surgery as well, as they will need to leave my chest open again to allow swelling to go down. Praying everything goes smoothly and that we are home just in time for my 1st Birthday/Thanksgiving 🦃😊🙏💪❤️💙🫀
#josiahschdjourney #heartwarrior #chd #cchd #CHDWarrior #chdawareness #chdbaby #CHDAware #rainbowbaby #thanksgivingbaby #chdstory #truncusarteriosus #truncusarteriosustype3